Parenting a child with a rare genetic disorder
(2016)
Book Chapter
Pelenstov, L., O'Shaughnessy, P., Laws, T., & Esterman, A. (2016). Parenting a child with a rare genetic disorder. In J. Merrick (Ed.), Children and Childhood : Some International Aspects (125-132). Nova Science Publishers
Parenting a child with a rare genetic disorder has special difficulties, because diagnosis may be delayed or undetermined, support groups may be small and geographically scattered, and healthcare skills and resources limited. Ectodermal dysplasia (ED... Read More about Parenting a child with a rare genetic disorder.