All Outputs (14)

Characteristics of refractory disease and persistent symptoms in inflammatory arthritis: Qualitative framework analysis of interviews with patients and health care professionals (2025)
Journal Article

Objectives

This study aims to explore patients' and clinicians' understanding and experiences of refractory disease (RD) and persistent physical and emotional symptoms (PPES) in patients with inflammatory arthritis (IA), namely rheumatoid arthri... Read More about Characteristics of refractory disease and persistent symptoms in inflammatory arthritis: Qualitative framework analysis of interviews with patients and health care professionals.

Pain management in people with inflammatory arthritis: British Society for Rheumatology guideline scope (2024)
Journal Article

Lay Summary: What does this mean for patients? Inflammatory arthritis includes conditions causing swollen and painful joints. The main types are rheumatoid arthritis, psoriatic arthritis, axial spondyloarthritis and juvenile idiopathic arthritis. It... Read More about Pain management in people with inflammatory arthritis: British Society for Rheumatology guideline scope.

Management of refractory disease and persistent symptoms in inflammatory arthritis: qualitative framework analysis of interviews with patients and healthcare professionals (2024)
Journal Article

Objectives

This study aims to explore patients’ and clinicians’ experiences in managing and living with refractory disease (RD) and persistent physical and emotional symptoms (PPES) in patients with RA or polyarticular JIA from their perspectives... Read More about Management of refractory disease and persistent symptoms in inflammatory arthritis: qualitative framework analysis of interviews with patients and healthcare professionals.

Mental health, quality of life and self-management behaviours: online evaluation of inflammatory arthritis patients over 1 year of COVID-19 lockdowns (2023)
Journal Article

Objective

Patients with inflammatory arthritis were especially vulnerable to the psychosocial and health impacts of coronavirus disease 2019 (COVID-19) and the lockdowns. This study investigated the impact of these changes on mental health, physic... Read More about Mental health, quality of life and self-management behaviours: online evaluation of inflammatory arthritis patients over 1 year of COVID-19 lockdowns.

Ongoing shielding behavior one year post COVID-19: results from a longitudinal study of patients with inflammatory arthritis (2023)
Journal Article

Many patients with inflammatory arthritis (IA) were instructed to shield during the COVID-19 pandemic. Despite the ending of lockdowns and vaccination, large proportions of IA patients were continuing to shield when it is no longer needed. Given the... Read More about Ongoing shielding behavior one year post COVID-19: results from a longitudinal study of patients with inflammatory arthritis.

Refractory inflammatory arthritis definition and model generated through patient and multi-disciplinary professional modified Delphi process (2023)
Journal Article

Objective

Various definitions have been proposed for Refractory Disease in people with Rheumatoid Arthritis; however, none were generated for Polyarticular Juvenile Idiopathic Arthritis or involving adult and paediatric multidisciplinary healthcar... Read More about Refractory inflammatory arthritis definition and model generated through patient and multi-disciplinary professional modified Delphi process.

The challenge of exercise (non) adherence: a scoping review of methods and techniques applied to improve adherence to physical activity and exercise in people with inflammatory arthritis (2023)
Journal Article
Chaplin, H., Sekhon, M., & Louise Godfrey, E. (2023). The challenge of exercise (non) adherence: a scoping review of methods and techniques applied to improve adherence to physical activity and exercise in people with inflammatory arthritis. Rheumatology Advances in Practice, 7(1), https://doi.org/10.1093/rap/rkac096

Objectives

The aims were to explore the nature of methods/techniques applied to improve adherence to physical activity (PA) and exercise in people with inflammatory arthritis and to identify whether studies were theory based and/or used behaviour... Read More about The challenge of exercise (non) adherence: a scoping review of methods and techniques applied to improve adherence to physical activity and exercise in people with inflammatory arthritis.

The impact of consecutive COVID-19 lockdowns in England on mental wellbeing in people with inflammatory arthritis (2022)
Journal Article

Background
During the first UK COVID-19 lockdown, studies identified over half of inflammatory arthritis (IA) patients in the UK reported a worsening of emotional distress. Given the prolonged nature of the pandemic, and the strict ‘shielding’ restr... Read More about The impact of consecutive COVID-19 lockdowns in England on mental wellbeing in people with inflammatory arthritis.

The impact of COVID-19 on clinical care, self-management and mental health of patients with inflammatory arthritis (2022)
Journal Article

Objectives: The coronavirus disease 2019 (COVID-19) lockdown and ongoing restrictions in the UK
affected access to clinical care, self-management and mental health for many patients with inflamma-
tory arthritis. The aim of this study was to determ... Read More about The impact of COVID-19 on clinical care, self-management and mental health of patients with inflammatory arthritis.

Summarizing current refractory disease definitions in rheumatoid arthritis and polyarticular juvenile idiopathic arthritis: systematic review (2021)
Journal Article
Chaplin, H., Carpenter, L., Raz, A., Nikiphorou, E., Lempp, H., & Norton, S. (2021). Summarizing current refractory disease definitions in rheumatoid arthritis and polyarticular juvenile idiopathic arthritis: systematic review. Rheumatology, 60(8), 3540–3552. https://doi.org/10.1093/rheumatology/keab237

Objectives
To identify how refractory disease (or relevant terminology variations) in RA and polyarticular JIA (polyJIA) is defined and establish the key components of such definitions.

Methods
Searches were undertaken of English-language articl... Read More about Summarizing current refractory disease definitions in rheumatoid arthritis and polyarticular juvenile idiopathic arthritis: systematic review.

Anxiety associates with pain and disability but not increased measures of inflammation for adolescent patients with juvenile idiopathic arthritis (2019)
Journal Article

Objective
To explore whether anxiety and depression are associated with clinical measures of disease for adolescent patients with juvenile idiopathic arthritis (JIA) and whether anxiety and depression are associated with increased peripheral proinfl... Read More about Anxiety associates with pain and disability but not increased measures of inflammation for adolescent patients with juvenile idiopathic arthritis.

Developing and Evaluating JIApp: Acceptability and Usability of a Smartphone App System to Improve Self-Management in Young People With Juvenile Idiopathic Arthritis (2017)
Journal Article

Background: Flare-ups in juvenile idiopathic arthritis (JIA) are characterized by joint pain and swelling and often accompanied
with fatigue, negative emotions, and reduced participation in activities. To minimize the impact of JIA on the physical a... Read More about Developing and Evaluating JIApp: Acceptability and Usability of a Smartphone App System to Improve Self-Management in Young People With Juvenile Idiopathic Arthritis.

Noise at night in hospital general wards (2015)
Journal Article
Fillary, J., Chaplin, H., Jones, G., Thompson, A., Holme, A., & Wilson, P. (2015). Noise at night in hospital general wards. British Journal of Nursing, 24(10), 515-540. https://doi.org/10.12968/bjon.2015.24.10.536

English NHS inpatient surveys consistently identify that noise at night in hospitals and its impact on patients' sleep is a persisting problem that needs addressing. To identify how noise at night in hospital affects patients on general wards and the... Read More about Noise at night in hospital general wards.

Self-management for people with long-term neurological conditions (2012)
Journal Article
Chaplin, H., Hazan, J., & Wilson, P. (2012). Self-management for people with long-term neurological conditions. British Journal of Community Nursing, 17(6), 250-257. https://doi.org/10.12968/bjcn.2012.17.6.250

Although English government policy has encouraged the implementation of self-management programmes in services for people with long-term conditions, the evidence for their efficacy has been limited. People with long-term neurological conditions use c... Read More about Self-management for people with long-term neurological conditions.