Children’s views and experiences of treatment adherence and parent/child co-management in eczema : a qualitative study (2021)
Journal Article
Teasdale, E., Sivyer, K., Muller, I., Ghio, D., Roberts, A., Lawton, S., & Santer, M. (2021). Children’s views and experiences of treatment adherence and parent/child co-management in eczema : a qualitative study. Children, 8(2), 158. https://doi.org/10.3390/children8020158

Eczema affects one in five children and can have a substantial impact on quality of life. This qualitative study aimed to explore children’s views and experiences of eczema and what may affect treatment adherence from their perspective. We conducted... Read More about Children’s views and experiences of treatment adherence and parent/child co-management in eczema : a qualitative study.

Psychosocial needs of adolescents and young adults with eczema : a secondary analysis of qualitative data to inform a behaviour change intervention (2020)
Journal Article
Ghio, D., Greenwell, K., Muller, I., Roberts, A., McNiven, A., & Santer, M. (2021). Psychosocial needs of adolescents and young adults with eczema : a secondary analysis of qualitative data to inform a behaviour change intervention. British Journal of Health Psychology, 26(1), 214-231. https://doi.org/10.1111/bjhp.12467

Objectives: This study aimed to explore adolescents and young adults’ experiences of symptoms related to their eczema in order to determine their psychosocial needs. Design: A secondary qualitative analysis of two data sources collected through... Read More about Psychosocial needs of adolescents and young adults with eczema : a secondary analysis of qualitative data to inform a behaviour change intervention.

Beliefs about inevitable decline among home-living older adults at risk of malnutrition : a qualitative study (2020)
Journal Article
Payne, L., Harris, P., Ghio, D., Slodkowska-Barabasz, J., Kelly, J., Stroud, M., …Morrison, L. (2020). Beliefs about inevitable decline among home-living older adults at risk of malnutrition : a qualitative study. Journal of Human Nutrition and Dietetics, 33(6), 841-851. https://doi.org/10.1111/jhn.12807

Background About 14% of free-living adults aged 65 and over are at risk of malnutrition. Malnutrition screen and treat interventions in primary care are few, show mixed results and advice given is not always accepted and followed. We need to better... Read More about Beliefs about inevitable decline among home-living older adults at risk of malnutrition : a qualitative study.

Views and experiences of managing eczema : systematic review and thematic synthesis of qualitative studies (2020)
Journal Article
Teasdale, E., Ghio, D., Muller, I., Sivyer, K., Greenwell, K., Wilczynska, S., …Santer, M. (2021). Views and experiences of managing eczema : systematic review and thematic synthesis of qualitative studies. British Journal of Dermatology, 184(4), 627-637. https://doi.org/10.1111/bjd.19299

Background The number of qualitative studies on eczema has increased rapidly in recent years. Systematically reviewing these can provide greater understandings of people’s perceptions of eczema and eczema treatments. Objectives We sought to sys... Read More about Views and experiences of managing eczema : systematic review and thematic synthesis of qualitative studies.

‘It's like the bad guy in a movie who just doesn't die’ : a qualitative exploration of young people's adaptation to eczema and implications for self‐care (2019)
Journal Article
Ghio, D., Muller, I., Greenwell, K., Roberts, A., McNiven, A., Langan, S., & Santer, M. (2020). ‘It's like the bad guy in a movie who just doesn't die’ : a qualitative exploration of young people's adaptation to eczema and implications for self‐care. British Journal of Dermatology, 182(1), 112-118. https://doi.org/10.1111/bjd.18046

Background Eczema is a common childhood inflammatory skin condition, affecting more than one in five children. A popular perception is that children ‘outgrow eczema’, although epidemiological studies have shown that, for many, eczema follows a lifel... Read More about ‘It's like the bad guy in a movie who just doesn't die’ : a qualitative exploration of young people's adaptation to eczema and implications for self‐care.

Barriers and facilitators to screening and treating malnutrition in older adults living in the community : a mixed-methods synthesis (2019)
Journal Article
Harris, P., Morrison, L., Green, S., Ghio, D., Hallett, C., Parsons, E., …Yardley, L. (2019). Barriers and facilitators to screening and treating malnutrition in older adults living in the community : a mixed-methods synthesis. BMC Family Practice, 20(100), https://doi.org/10.1186/s12875-019-0983-y

Background Malnutrition (specifically undernutrition) in older, community-dwelling adults reduces well-being and predisposes to disease. Implementation of screen-and-treat policies could help to systematically detect and treat at-risk and malnourish... Read More about Barriers and facilitators to screening and treating malnutrition in older adults living in the community : a mixed-methods synthesis.

“Seeing pain differently” : a qualitative investigation Into the differences and similarities of pain and rheumatology specialists’ interpretation of multidimensional mobile health pain data from children and young people with Juvenile Idiopathic Arthritis (2019)
Journal Article
Lee, R., Rashid, A., Ghio, D., Thomson, W., & Cordingley, L. (2019). “Seeing pain differently” : a qualitative investigation Into the differences and similarities of pain and rheumatology specialists’ interpretation of multidimensional mobile health pain data from children and young people with Juvenile Idiopathic Arthritis. JMIR mHealth and uHealth, 7(7), https://doi.org/10.2196/12952

Background: In contrast to the use of traditional unidimensional paper-based scales, a mobile health (mHealth) assessment of pain in children and young people (CYP) with juvenile idiopathic arthritis (JIA) enables comprehensive and complex multidimen... Read More about “Seeing pain differently” : a qualitative investigation Into the differences and similarities of pain and rheumatology specialists’ interpretation of multidimensional mobile health pain data from children and young people with Juvenile Idiopathic Arthritis.

The prioritization of symptom beliefs over illness beliefs : the development and validation of the Pain Perception Questionnaire for young people (2017)
Journal Article
Ghio, D., Thomson, W., Calam, R., Ulph, F., Baildam, E., Hyrich, K., & Cordingley, L. (2018). The prioritization of symptom beliefs over illness beliefs : the development and validation of the Pain Perception Questionnaire for young people. British Journal of Health Psychology, 23(1), 68-87. https://doi.org/10.1111/bjhp.12275

Objectives To investigate the suitability of the revised Illness Perception Questionnaire (IPQ‐R) for use with adolescents with a long‐term pain condition and to validate a new questionnaire for use with this age group. Design A three‐phase mix... Read More about The prioritization of symptom beliefs over illness beliefs : the development and validation of the Pain Perception Questionnaire for young people.

Chronic pain assessments in children and adolescents : a systematic literature review of the selection, administration, interpretation, and reporting of unidimensional pain intensity scales (2017)
Journal Article
Lee, R., Rashid, A., Ghio, D., Thomson, W., & Cordingley, L. (2017). Chronic pain assessments in children and adolescents : a systematic literature review of the selection, administration, interpretation, and reporting of unidimensional pain intensity scales. Pain Research and Management, 2017, 1-17. https://doi.org/10.1155/2017/7603758

Background. Advances in pain assessment approaches now indicate which measures should be used to capture chronic pain experiences in children and adolescents. However, there is little guidance on how these tools should best be administered and report... Read More about Chronic pain assessments in children and adolescents : a systematic literature review of the selection, administration, interpretation, and reporting of unidimensional pain intensity scales.

OP0157-HPR “This feeling!” : can a new Ipad app help children with juvenile idiopathic arthritis communicate their pain experiences? Feasibility, usability and acceptability (2015)
Journal Article
Tapping, P., Rashid, A., Thomson, W., Ghio, D., Cordingley, L., Calam, R., …Chieng, A. (2015). OP0157-HPR “This feeling!” : can a new Ipad app help children with juvenile idiopathic arthritis communicate their pain experiences? Feasibility, usability and acceptability. Annals of the Rheumatic Diseases, 74, 128. https://doi.org/10.1136/annrheumdis-2015-eular.1141

Background Pain is the most common symptom of Juvenile Idiopathic Arthritis (JIA), and it is known to cause significant distress for young people. Despite advances in treatment, pain is often still poorly managed. Multidimensional approaches are need... Read More about OP0157-HPR “This feeling!” : can a new Ipad app help children with juvenile idiopathic arthritis communicate their pain experiences? Feasibility, usability and acceptability.

Adolescents : missed opportunities in health psychology (2015)
Journal Article
Ghio, D. (2015). Adolescents : missed opportunities in health psychology. Health Psychology Update, 24(2), 25-28

How do paediatric pain experts and healthcare professionals prioritise patient-reported pain information from children with Juvenile Idiopathic Arthritis
Presentation / Conference
Lee, R., Rashid, A., Ghio, D., Thomson, W., & Cordingley, L. How do paediatric pain experts and healthcare professionals prioritise patient-reported pain information from children with Juvenile Idiopathic Arthritis. Poster presented at British Society for Paediatric and Adolescent Rheumatology 2017, Sheffield, UK

Background: Patient self-report of pain is regarded as the gold standard of assessment. There is increased recognition of the importance of using electronic, real-time data capture with multi-dimensional methods for children who have chronic pain. No... Read More about How do paediatric pain experts and healthcare professionals prioritise patient-reported pain information from children with Juvenile Idiopathic Arthritis.

Beliefs about pain in juvenile idiopathic arthritis are significantly associated with higher reported pain and more negative affect in children and young people
Presentation / Conference
Lee, R., Muckian, C., Damaraju, S., Ghio, D., Thomson, W., & Cordingley, L. Beliefs about pain in juvenile idiopathic arthritis are significantly associated with higher reported pain and more negative affect in children and young people. Poster presented at Paediatric and Adolescent Rheumatology Conference 2019, Millenium Point, Birmingham, UK

Background Persistent, unpredictable pain is one of the most burdensome features of juvenile idiopathic arthritis (JIA) which is a relapsing-remitting inflammatory musculoskeletal condition presenting in children and young people under 16 years. Rec... Read More about Beliefs about pain in juvenile idiopathic arthritis are significantly associated with higher reported pain and more negative affect in children and young people.

Development and feasibility testing of a new Ipad application, this Feeling, to aid communication of pain in children with juvenile idiopathic arthritis
Presentation / Conference
Tapping, P., Rashid, A., Ghio, D., Cheing, A., Jimmieson, P., Calam, R., …Thomson, W. Development and feasibility testing of a new Ipad application, this Feeling, to aid communication of pain in children with juvenile idiopathic arthritis. Presented at Rheumatology 2015, Manchester, UK

Background: Despite advances in pain assessment systems, questions remain over how best to help children with inflammatory musculoskeletal conditions such as JIA communicate with healthcare professionals about their pain experiences. Accurate pain co... Read More about Development and feasibility testing of a new Ipad application, this Feeling, to aid communication of pain in children with juvenile idiopathic arthritis.

Validating a pain perception questionnaire for young people with juvenile arthritis
Presentation / Conference
Ghio, D., Calam, R., Hyrich, K., Thomson, W., CAPS, C. A. P. S., & Cordingley, L. Validating a pain perception questionnaire for young people with juvenile arthritis. Poster presented at Rheumatology 2015, Manchester, UK

Background: The ways in which people perceive their illness are known to affect long-term outcomes. The Common Sense-Self-Regulatory Model (CS-SRM) is used as a theoretical framework to investigate the influence of illness beliefs on outcomes and the... Read More about Validating a pain perception questionnaire for young people with juvenile arthritis.

Investigating children's beliefs about juvenile arthritis : a study using cognitive interviewing
Presentation / Conference
Ghio, D., Thomson, W., Baildam, E., Hyrich, K., Beresford, M., Lydon, C., …Cordingley, L. Investigating children's beliefs about juvenile arthritis : a study using cognitive interviewing. Poster presented at ACR/ARHP Scientific Meeting 2011, Chicago, USA

Background/Purpose: Juvenile idiopathic arthritis (JIA) is the most common chronic rheumatic illness in childhood. An understanding of how children make sense of their JIA symptoms is important for long-term management and treatment. There is increas... Read More about Investigating children's beliefs about juvenile arthritis : a study using cognitive interviewing.

A systematic review of chronic pain assessments with children and young people : exploring administrative, scoring and classification issues
Presentation / Conference
Lee, R., Rashid, A., Ghio, D., Thomson, W., & Cordingley, L. A systematic review of chronic pain assessments with children and young people : exploring administrative, scoring and classification issues. Poster presented at 2016 ACR/ARHP Annual Meeting, Washington, DC, USA

Background/Purpose: Pain is often the most troubling feature of musculoskeletal disease in children and young people (CYP). In paediatric pain research, recent attempts to standardise the assessment of chronic pain for CYP have been pivotal in establ... Read More about A systematic review of chronic pain assessments with children and young people : exploring administrative, scoring and classification issues.

“I wouldn’t swap semi-skimmed milk for whole milk” : using the person-based approach to develop a personally relevant screen and treat intervention for malnutrition risk in adults aged 65 and over in primary care
Presentation / Conference
Payne, E., Morrison, L., Harris, P., Ghio, D., Slodkowska-Barabasz, J., Grey, E., …Yardley, L. “I wouldn’t swap semi-skimmed milk for whole milk” : using the person-based approach to develop a personally relevant screen and treat intervention for malnutrition risk in adults aged 65 and over in primary care. Presented at 15th UKSBM Annual Scientific Meeting, Apex City of Bath Hotel, Bath, UK

Development of eczema care online, a digital intervention to support eczema self-management in young people
Presentation / Conference
Greenwell, K., Santer, M., Ghio, D., Sivyer, K., Teasdale, E., Wilcynska, S., …Muller, I. Development of eczema care online, a digital intervention to support eczema self-management in young people. Presented at 33rd Annual Conference of the European Health Psychology Society, Dubronvnik, Croatia

Background: This research aimed to develop Eczema Care Online (ECO), a digital intervention to support eczema self-management in young people (13-25 years). Methods: Theory-, evidence- and person-based approaches to intervention development were u... Read More about Development of eczema care online, a digital intervention to support eczema self-management in young people.