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Sudden unexpected death in childhood in Greater Manchester (United Kingdom) : a five-year review (2015-2020) (2022)
Journal Article
Quinn, S., Dierckx, E., Long, T., & Rowland, A. (2022). Sudden unexpected death in childhood in Greater Manchester (United Kingdom) : a five-year review (2015-2020). Comprehensive Child and Adolescent Nursing, 45(4), 349-367. https://doi.org/10.1080/24694193.2022.2047828

The sudden, unexpected death of a child (SUDC) is a devastating experience. It is vital that supportive and investigative services are effective and promote the best outcomes for families. Analysis of five years of data from 309 SUDC cases in Grea... Read More about Sudden unexpected death in childhood in Greater Manchester (United Kingdom) : a five-year review (2015-2020).

The need for children's advocacy centres : hearing the voices of children (2021)
Journal Article
Cook, D., Livesley, J., Long, T., Sam, M., & Rowland, A. (2021). The need for children's advocacy centres : hearing the voices of children. Comprehensive Child and Adolescent Nursing, https://doi.org/10.1080/24694193.2021.1989085

Children and young people (CYP) can be empowered to take on roles as agents of change in their own communities. CYP want to be heard and should be actively involved in the coproduction, design and development of services aimed at them to ensure that... Read More about The need for children's advocacy centres : hearing the voices of children.

Improving outcomes for children affected by parental involvement with the criminal justice system in Scotland (2021)
Journal Article
Long, T., Lockwood, K., Loucks, N., Nugent, B., Raikes, B., Sharratt, K., & Gallagher, L. (2021). Improving outcomes for children affected by parental involvement with the criminal justice system in Scotland. Applied Research in Quality of Life, https://doi.org/10.1007/s11482-021-10012-0

With 20-27,000 children in Scotland experiencing a parent’s imprisonment and many more their parent’s involvement in the wider criminal justice system, it is vital that children’s needs and preferences are understood and acted upon. Parental imprison... Read More about Improving outcomes for children affected by parental involvement with the criminal justice system in Scotland.

The Paediatric Admission Guidance in the Emergency Department (PAGE) supporting documentation (2021)
Other
Rowland, A., Long, T., Roland, D., Cotterill, S., Heal, C., Garratt, N., …Bonnett, L. (2021). The Paediatric Admission Guidance in the Emergency Department (PAGE) supporting documentation. Salford, UK

Funded by the National Institute for Health Research (NIHR), the study that led to the production of the Paediatric Admission Guidance in the Emergency Department (PAGE) tool was designed to support better decision-making in paediatric emergency depa... Read More about The Paediatric Admission Guidance in the Emergency Department (PAGE) supporting documentation.

Observational cohort study with internal and external validation of a predictive tool for identification of children in need of hospital admission from the emergency department : the Paediatric Admission Guidance in the Emergency department (PAGE) score (2020)
Journal Article
Rowland, A., Cotterill, S., Heal, C., Garratt, N., Long, T., Bonnett, L., …Roland, D. (2020). Observational cohort study with internal and external validation of a predictive tool for identification of children in need of hospital admission from the emergency department : the Paediatric Admission Guidance in the Emergency department (PAGE) score. BMJ Open, 10, e043864. https://doi.org/10.1136/bmjopen-2020-043864

Objectives: To devise an assessment tool to aid discharge and admission decision making in relation to children and young people in hospital urgent and emergency care facilities, and thereby improve the quality of care that patients receive, using a... Read More about Observational cohort study with internal and external validation of a predictive tool for identification of children in need of hospital admission from the emergency department : the Paediatric Admission Guidance in the Emergency department (PAGE) score.

A feasibility study of enhanced occupational therapy for children and young people with central nervous system tumours – outcomes for the families and for occupational therapy (2020)
Journal Article
Morgan, R., Estlin, E., Pizer, B., Keane, J., Bowyer, P., Nenadic, G., …Long, T. (2020). A feasibility study of enhanced occupational therapy for children and young people with central nervous system tumours – outcomes for the families and for occupational therapy. CYPF journal, Autumn(2020), 20-28

A two-year feasibility study was conducted to explore harmonisation of occupation-focused practice between two UK children’s cancer centres. The Short Child Occupational Profile (SCOPE) identified occupational needs of children with brain tumours to... Read More about A feasibility study of enhanced occupational therapy for children and young people with central nervous system tumours – outcomes for the families and for occupational therapy.

The impact of a school-based, nurse-delivered asthma health education programme on quality of life, knowledge and attitudes of Saudi children with asthma (2020)
Journal Article
Alreshidi, N., Livesley, J., Al-Kalaldeh, M., & Long, T. (2020). The impact of a school-based, nurse-delivered asthma health education programme on quality of life, knowledge and attitudes of Saudi children with asthma. Comprehensive Child and Adolescent Nursing, 45(1), 43-57. https://doi.org/10.1080/24694193.2020.1824033

Background More than two million people have asthma in Saudi Arabia: 13% aged 6-10 years. Asthma is one of the most common childhood illnesses. Little has been explored about children’s ability to learn more about their own asthma in Saudi Arabia.... Read More about The impact of a school-based, nurse-delivered asthma health education programme on quality of life, knowledge and attitudes of Saudi children with asthma.

Inter-rater reliability of paediatric emergency assessment : physiological and clinical features (2020)
Journal Article
Heal, C., Cotterill, S., Rowland, A., Garratt, N., Long, T., Brown, S., …Roland, D. (2021). Inter-rater reliability of paediatric emergency assessment : physiological and clinical features. Archives of Disease in Childhood, 106(2), 149-153. https://doi.org/10.1136/archdischild-2019-318664

Objective The Paediatric Admission Guidance in the Emergency Department (PAGE) score is an assessment tool currently in development that helps predict hospital admission using components including patient characteristics, vital signs (heart rate, te... Read More about Inter-rater reliability of paediatric emergency assessment : physiological and clinical features.

Opt-out consent in children’s emergency medicine research (2020)
Journal Article
Long, T., Rowland, A., Cotterill, S., Woby, S., Heal, C., Garratt, N., …Roland, D. (2022). Opt-out consent in children’s emergency medicine research. Comprehensive Child and Adolescent Nursing, 45(1), 31-42. https://doi.org/10.1080/24694193.2020.1812766

There is global acceptance that individuals should be allowed to decide whether or not to take part in research studies, and to do so after being informed about the nature of the research and the risk that might attach to participation. The process o... Read More about Opt-out consent in children’s emergency medicine research.

Parental involvement in decision-making in the neonatal intensive care unit : a review of the international evidence (2020)
Journal Article
Fairhurst, N., & Long, T. (2020). Parental involvement in decision-making in the neonatal intensive care unit : a review of the international evidence. Paediatrics and Child Health, 30(4), 119-123. https://doi.org/10.1016/j.paed.2020.01.001

The aim of this review was to establish the current evidence base regarding parental involvement in decision-making in the NICU. The review question was set as ‘What is known about the process of parental participation in clinical decision-making in... Read More about Parental involvement in decision-making in the neonatal intensive care unit : a review of the international evidence.

Comparison of the expressed experiences of survivors of childhood medulloblastoma with measures of health and quality of life, and with issues identified in consultations (2015)
Report
Long, T., Estlin, E., Nenadic, G., Keane, J., Gattamaneni, R., McCabe, M., …Deghan, A. (2015). Comparison of the expressed experiences of survivors of childhood medulloblastoma with measures of health and quality of life, and with issues identified in consultations

When the study was planned, the Young Oncology Unit at The Christie housed both the adult and paediatric follow-up clinics for patients who have been diagnosed with a tumour of the central nervous system (CNS) in childhood and adolescence or young ad... Read More about Comparison of the expressed experiences of survivors of childhood medulloblastoma with measures of health and quality of life, and with issues identified in consultations.

A community health needs evaluation : improving uptake of services at a children's centre in a deprived and geographically isolated town (2008)
Journal Article
Long, T., Fallon, D., Devitt, P., Oak, E., Murphy, M., & Dugdill, L. (2008). A community health needs evaluation : improving uptake of services at a children's centre in a deprived and geographically isolated town. Journal of children's and young people's nursing, 2(3), 108-114. https://doi.org/10.12968/jcyn.2008.2.3.28702

The evaluation identified health and social trends for this deprived and geographically isolated area, elicited perceived health needs of under-fives in the local community, and informed development and improvement of services offered by a children’s... Read More about A community health needs evaluation : improving uptake of services at a children's centre in a deprived and geographically isolated town.