Self-reported benefits for care partners of attending a person-centred dementia cafe

Chesterton, L; Innes, A; Smith, S; Morris, L

Abstract

Informal care partners of individuals with dementia are often referred to as the ‘invisible patient’, whose needs are under-represented in research. The physical, mental and emotional responsibilities of caring for someone with dementia can be both rewarding and challenging. This qualitative study explored how attending a dementia cafe affected care partner well-being. The co-designed cafe adopted a person-centred approach, valuing members’ unique abilities and contributions. Results showed that the cafe provided a safe environment where individuals could be themselves. Participants found a sense of belonging, camaraderie and friendship that enhanced their sense of well-being and maintained their selfhood and dignity.

Citation

Chesterton, L., Innes, A., Smith, S., & Morris, L. (2021). Self-reported benefits for care partners of attending a person-centred dementia cafe. International Journal of Care and Caring, 6(4), 586-603. https://doi.org/10.1332/239788221x16357690075748

• Journal Article Type: Article
• Publication Date: Dec 1, 2021
• Deposit Date: Aug 2, 2022
• Journal: International Journal of Care and Caring
• Print ISSN: 2397-8821
• Publisher: Bristol University Press
• Volume: 6
• Issue: 4
• Pages: 586-603
• DOI: https://doi.org/10.1332/239788221x16357690075748
• Publisher URL: https://doi.org/10.1332/239788221X16357690075748
• Additional Information: Projects : NURA63