A Innes
“It's just so important that people's voices are heard” : the dementia associate panel
Innes, A; Smith, SK; Wyatt, ME; Bushell, S
Authors
SK Smith
ME Wyatt
S Bushell
Abstract
Including the views and experiences of people living with dementia in research and wider decision making is vital. The impact for the subjective wellbeing of its members of an approach known as The Dementia Associate Panel (DAP) is explored. The panel, based on a social citizenship model, aimed to provide a platform to work with and hear the voices of people living with dementia in a region of England. A mixed method approach using semi-structured interviews, self-report questionnaires, and focus groups was adopted. There were 16 participants; six people living with dementia and ten care partners. Participant motivations to join the panel were based on a desire for individuals' voices and experiences to be heard. Following participation in the panel, participants reported experiencing belonging and purpose.
Collective and personal contributions to the development of local health and care policies, education provision, research studies, and to raising general public awareness about dementia was beneficial to reported participant wellbeing. The DAP model has the potential to be developed and adapted when working with people living with dementia in different settings; at national or regional levels across the globe.
Citation
Innes, A., Smith, S., Wyatt, M., & Bushell, S. (2021). “It's just so important that people's voices are heard” : the dementia associate panel. Journal of Aging Studies, 59, 100958. https://doi.org/10.1016/j.jaging.2021.100958
Journal Article Type | Article |
---|---|
Acceptance Date | Aug 13, 2021 |
Online Publication Date | Aug 17, 2021 |
Publication Date | Dec 1, 2021 |
Deposit Date | Aug 23, 2021 |
Publicly Available Date | Feb 17, 2023 |
Journal | Journal of Aging Studies |
Print ISSN | 0890-4065 |
Publisher | Elsevier |
Volume | 59 |
Pages | 100958 |
DOI | https://doi.org/10.1016/j.jaging.2021.100958 |
Publisher URL | https://doi.org/10.1016/j.jaging.2021.100958 |
Related Public URLs | http://www.journals.elsevier.com/journal-of-aging-studies/ |
Files
23 August revised DAP paper clean copy for library archive.pdf
(1.5 Mb)
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Licence
http://creativecommons.org/licenses/by-nc-nd/4.0/
Publisher Licence URL
http://creativecommons.org/licenses/by-nc-nd/4.0/
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