Patterns of change and stability in caregiver burden and life satisfaction from 1 to 2 years after severe traumatic brain injury : a Norwegian longitudinal study

Manskow, UM; Friborg, O; Roe, C; Braine, ME; Damsgard, E; Anke, A

Abstract

Objectives: To assess burden and life satisfaction in caregivers of patients with severe traumatic brain injury (sTBI) at 1 and 2 years post-injury, to examine if change in burden can be predicted by caregiver and patient demographics, patient’s functional status, caregiver’s social network or caregiver’s level of burden at 1 year.
Design: Prospective national multicenter study. Self-report from caregivers, patient data collected from a national cohort study on patients with sTBI.
Participants: 80 caregivers.
Main outcome measure: The Caregiver Burden Scale (CBS), life satisfaction.
Results: The total caregiver burden increased significantly between years 1 and 2 post-injury (p=0.04). Life Satisfaction was significantly lower at 2 years follow-up (p=0.03) than at 1 year. Thirty percent of the caregivers reported an increased burden, 55% were stable, and 15% had a decrease in burden between the two follow-up times. Logistic regression analyses revealed that experiencing loneliness was an independent predictor of increased burden from 1 to 2 years post-injury (OR=4.35, p<0.05).
Conclusions: The results demonstrate a need for long-term follow-up of patients and caregivers that particularly focuses on professional support to relieve caregiver burden and risk of loneliness or social isolation. This group may benefit from additional follow-up interventions tailored to their needs.

Citation

Manskow, U., Friborg, O., Roe, C., Braine, M., Damsgard, E., & Anke, A. (2017). Patterns of change and stability in caregiver burden and life satisfaction from 1 to 2 years after severe traumatic brain injury : a Norwegian longitudinal study. NeuroRehabilitation, 40(2), 211-222. https://doi.org/10.3233/NRE-161406

• Journal Article Type: Article
• Acceptance Date: Jun 28, 2016
• Publication Date: Mar 27, 2017
• Deposit Date: Aug 9, 2016
• Publicly Available Date: Sep 27, 2016
• Journal: NeuroRehabilitation
• Print ISSN: 1053-8135
• Electronic ISSN: 1878-6448
• Publisher: IOS Press
• Volume: 40
• Issue: 2
• Pages: 211-222
• DOI: https://doi.org/10.3233/NRE-161406
• Publisher URL: http://dx.doi.org/10.3233/NRE-161406
• Related Public URLs: http://www.iospress.nl/journal/neurorehabilitation/
• Additional Information: Funders : Norwegian Regional Health Authorities; Projects : The families experience: caregiver burden, health care services and lifesatisfaction after traumatic brain injury. A norwegian multicenterstudy