Measuring patients' preferences and priorities for information in chronic kidney disease

Ormandy, P; Hulme, C

Abstract

Objective: To evaluate an information needs questionnaire that uses a Thurstone’s paired comparison approach to measure the information needs of patients with chronic kidney disease.
Methods: A two-phased, cross-sectional survey that sequentially develops and tests the questionnaire. Semi-structured interviews (n=20) generated information needs items for inclusion in the questionnaire. These items were paired using Ross’s matrix. The questionnaire was used in interviews in phase two (n=89) and paired comparison analysis was undertaken.
Results: A majority of patients ranked highly self-care information, how to manage their own condition, better control their diet and fluid intake, and understand blood results. 70.79% of patients agreed all items in the questionnaire to be relevant; there was an acceptable degree of reliability for data scalability (R2 =0.6175); agreement found between patients (Kendall’s coefficient 0.06, p<0.001); and all patients’ responses were deemed consistent (circular triads >30). Despite this, there was not a good fit between data and Case V and Case III models (Mosteller χ2=52.21, p=0.003, χ2=49.49 p<0.001 respectively).
Conclusion: Using this approach it is possible to identify and measure the strengths of preferences for information of chronic kidney disease patients. Further testing with a larger sample to examine the internal consistency and scalability of the data is required.

Citation

Ormandy, P., & Hulme, C. (2013). Measuring patients' preferences and priorities for information in chronic kidney disease. Information Research, 18(3),

• Journal Article Type: Article
• Publication Date: Sep 1, 2013
• Deposit Date: May 1, 2018
• Journal: Information Research
• Print ISSN: 1368-1613
• Publisher: Information Research
• Peer Reviewed: Peer Reviewed
• Volume: 18
• Issue: 3
• Publisher URL: http://www.informationr.net/ir/18-3/paper588.html#.UphUi9I72jE
• Related Public URLs: http://www.informationr.net/index.html
• Additional Information: Access Information : Full paper available at the official URL link above.