OP0167 EULAR POINTS TO CONSIDER FOR PATIENT EDUCATION, PAIN MANAGEMENT AND PHYSICAL ACTIVITY ADAPTED TO THE SELF-MANAGEMENT OF JUVENILE-ONSET RHEUMATIC AND MUSCULOSKELETAL DISEASES DURING TRANSITIONAL CARE. THE EULAR MOVE-UP PROJECT

Prieto-Moreno, R.; Courel-Ibañez, J.; Briones-Vozmediano, E.; Angevare, S.; Anton, J.; Ariza-Vega, P.; Bini, I.; Clemente, D.; Correia, M.; Costello, W.; C. Diederik, D.; Domjan, A.; Leon Mateos, L.; Marques, A.; Minden, K.; F. Mourão, A.; Najm, A.; Özen, S.; Pimentel, G.; Saleem, Z.; Vetrovsky, T.; Wulffraat, N.; Zacarias, A.; Prior, Y.; Carmona, L.; Estevez-Lopez, F.

Abstract

Background The EULAR task force “Implementation of a mobile health app for the self-management of juvenile-onset rheumatic and musculoskeletal diseases (jRMDs) during transitional care” aims at designing, developing and implementing a self-management program through a smartphone app (i.e., the EULAR Move-Up app). The first step of this task force was to adapt the current EULAR recommendations/points originally developed for adults, to young people (YP) with jRMDs.

Objectives Adapting EULAR recommendations/points for patient education, pain management and physical activity for self-management of jRMDs during transitional care.

Methods A multidisciplinary taskforce of 25 members from 11 European countries was convened. Using a Delphi technique, the level of agreement was established by anonymous online voting in three rounds.

Results Four overarching principles and 8 points to consider were formulated (Table 1). The agreement was high, ranging from 8.7 to 9.9.

Conclusion This work will feed into an evidence-based framework to inform the development of the EULAR Move-Up app aiming at improving the quality of transitional care of jRMDs.

• Journal Article Type: Article
• Acceptance Date: May 30, 2023
• Online Publication Date: Jan 2, 2025
• Publication Date: 2023-06
• Deposit Date: Jan 3, 2024
• Journal: Annals of the Rheumatic Diseases
• Print ISSN: 0003-4967
• Electronic ISSN: 1468-2060
• Publisher: BMJ Publishing Group
• Peer Reviewed: Peer Reviewed
• Volume: 82
• Pages: 111
• DOI: https://doi.org/10.1136/annrheumdis-2023-eular.264