R. Prieto-Moreno
OP0167 EULAR POINTS TO CONSIDER FOR PATIENT EDUCATION, PAIN MANAGEMENT AND PHYSICAL ACTIVITY ADAPTED TO THE SELF-MANAGEMENT OF JUVENILE-ONSET RHEUMATIC AND MUSCULOSKELETAL DISEASES DURING TRANSITIONAL CARE. THE EULAR MOVE-UP PROJECT
Prieto-Moreno, R.; Courel-Ibañez, J.; Briones-Vozmediano, E.; Angevare, S.; Anton, J.; Ariza-Vega, P.; Bini, I.; Clemente, D.; Correia, M.; Costello, W.; C. Diederik, D.; Domjan, A.; Leon Mateos, L.; Marques, A.; Minden, K.; F. Mourão, A.; Najm, A.; Özen, S.; Pimentel, G.; Saleem, Z.; Vetrovsky, T.; Wulffraat, N.; Zacarias, A.; Prior, Y.; Carmona, L.; Estevez-Lopez, F.
Authors
J. Courel-Ibañez
E. Briones-Vozmediano
S. Angevare
J. Anton
P. Ariza-Vega
I. Bini
D. Clemente
M. Correia
W. Costello
D. C. Diederik
A. Domjan
L. Leon Mateos
A. Marques
K. Minden
A. F. Mourão
A. Najm
S. Özen
G. Pimentel
Z. Saleem
T. Vetrovsky
N. Wulffraat
A. Zacarias
Prof Yeliz Prior Y.Prior@salford.ac.uk
Professor of Clinical Rehabilitation
L. Carmona
F. Estevez-Lopez
Abstract
Background The EULAR task force “Implementation of a mobile health app for the self-management of juvenile-onset rheumatic and musculoskeletal diseases (jRMDs) during transitional care” aims at designing, developing and implementing a self-management program through a smartphone app (i.e., the EULAR Move-Up app). The first step of this task force was to adapt the current EULAR recommendations/points originally developed for adults, to young people (YP) with jRMDs.
Objectives Adapting EULAR recommendations/points for patient education, pain management and physical activity for self-management of jRMDs during transitional care.
Methods A multidisciplinary taskforce of 25 members from 11 European countries was convened. Using a Delphi technique, the level of agreement was established by anonymous online voting in three rounds.
Results Four overarching principles and 8 points to consider were formulated (Table 1). The agreement was high, ranging from 8.7 to 9.9.
Conclusion This work will feed into an evidence-based framework to inform the development of the EULAR Move-Up app aiming at improving the quality of transitional care of jRMDs.
| Journal Article Type | Article |
|---|---|
| Acceptance Date | May 30, 2023 |
| Online Publication Date | Jan 2, 2025 |
| Publication Date | 2023-06 |
| Deposit Date | Jan 3, 2024 |
| Journal | Annals of the Rheumatic Diseases |
| Print ISSN | 0003-4967 |
| Electronic ISSN | 1468-2060 |
| Publisher | BMJ Publishing Group |
| Peer Reviewed | Peer Reviewed |
| Volume | 82 |
| Pages | 111 |
| DOI | https://doi.org/10.1136/annrheumdis-2023-eular.264 |