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Identifying information needs of patients with IgA Nephropathy, using an innovative social media stepped analytical approach (2021)
Journal Article
Vasilica, C., Oates, T., Clausner, C., Ormandy, P., Barratt, J., & Graham-Brown, M. (2021). Identifying information needs of patients with IgA Nephropathy, using an innovative social media stepped analytical approach. Kidney International Reports, 6(5), 1317-1325. https://doi.org/10.1016/j.ekir.2021.02.030

Introduction Increasingly people with kidney disease are using social media to search for medical information and to find peer-support. IgA nephropathy (IgAN) predominantly affects young adults, demographically the biggest users of... Read More about Identifying information needs of patients with IgA Nephropathy, using an innovative social media stepped analytical approach.

Study protocol : responding to the needs of patients with IgA nephropathy, a social media approach (2017)
Journal Article
Graham-Brown, M., Vasilica, C., Oates, T., Light, B., Clausner, C., Antonacopoulos, A., …Barratt, J. (2017). Study protocol : responding to the needs of patients with IgA nephropathy, a social media approach. Clinical Kidney Journal, 11(4), 474-478. https://doi.org/10.1093/ckj/sfx131

Background IgA nephropathy is the most common cause of glomerulonephritis in the Western world and predominantly affects young adults. Demographically these patients are the biggest users of social media. With increasing numbers of patients turning... Read More about Study protocol : responding to the needs of patients with IgA nephropathy, a social media approach.