All Outputs (49)

Systematic review of the evidence to support expert practice in the education and care of children and young people with special educational needs and disability in the UK (2022)
Journal Article
Clarry, L., Wood, A., & Long, T. (in press). Systematic review of the evidence to support expert practice in the education and care of children and young people with special educational needs and disability in the UK. Journal of Research in Special Educational Needs, https://doi.org/10.1111/1471-3802.12589

Scopus, Ebsco, ERIC, and British Education Index were interrogated in a systematic review of primary research since 2014 addressing expert practice and outcomes in education and care for young people with special educational needs and disability in t... Read More about Systematic review of the evidence to support expert practice in the education and care of children and young people with special educational needs and disability in the UK.

Sudden unexpected death in childhood in Greater Manchester (United Kingdom) : a five-year review (2015-2020) (2022)
Journal Article
Quinn, S., Dierckx, E., Long, T., & Rowland, A. (2022). Sudden unexpected death in childhood in Greater Manchester (United Kingdom) : a five-year review (2015-2020). Comprehensive Child and Adolescent Nursing, 45(4), 349-367. https://doi.org/10.1080/24694193.2022.2047828

The sudden, unexpected death of a child (SUDC) is a devastating experience. It is vital that supportive and investigative services are effective and promote the best outcomes for families. Analysis of five years of data from 309 SUDC cases in Grea... Read More about Sudden unexpected death in childhood in Greater Manchester (United Kingdom) : a five-year review (2015-2020).

The need for children's advocacy centres : hearing the voices of children (2021)
Journal Article
Cook, D., Livesley, J., Long, T., Sam, M., & Rowland, A. (2021). The need for children's advocacy centres : hearing the voices of children. Comprehensive Child and Adolescent Nursing, https://doi.org/10.1080/24694193.2021.1989085

Children and young people (CYP) can be empowered to take on roles as agents of change in their own communities. CYP want to be heard and should be actively involved in the coproduction, design and development of services aimed at them to ensure that... Read More about The need for children's advocacy centres : hearing the voices of children.

Improving outcomes for children affected by parental involvement with the criminal justice system in Scotland (2021)
Journal Article
Long, T., Lockwood, K., Loucks, N., Nugent, B., Raikes, B., Sharratt, K., & Gallagher, L. (2021). Improving outcomes for children affected by parental involvement with the criminal justice system in Scotland. Applied Research in Quality of Life, https://doi.org/10.1007/s11482-021-10012-0

With 20-27,000 children in Scotland experiencing a parent’s imprisonment and many more their parent’s involvement in the wider criminal justice system, it is vital that children’s needs and preferences are understood and acted upon. Parental imprison... Read More about Improving outcomes for children affected by parental involvement with the criminal justice system in Scotland.

A double-edged sword : children’s experiences of visiting a parent in prison in Scotland (2021)
Journal Article
Lockwood, K., Long, T., Loucks, N., Raikes, B., & Sharratt, K. (2021). A double-edged sword : children’s experiences of visiting a parent in prison in Scotland. Probation Journal, 69(2), 159-176. https://doi.org/10.1177/02645505211025592

Prison visits are recognised as an important feature of a humane prison system, providing important benefits for prisoners and their family in maintaining ties (McCarthy & Adams, 2017). Scotland has a history of penal welfarism and a right-based agen... Read More about A double-edged sword : children’s experiences of visiting a parent in prison in Scotland.

Observational cohort study with internal and external validation of a predictive tool for identification of children in need of hospital admission from the emergency department : the Paediatric Admission Guidance in the Emergency department (PAGE) score (2020)
Journal Article
Rowland, A., Cotterill, S., Heal, C., Garratt, N., Long, T., Bonnett, L., …Roland, D. (2020). Observational cohort study with internal and external validation of a predictive tool for identification of children in need of hospital admission from the emergency department : the Paediatric Admission Guidance in the Emergency department (PAGE) score. BMJ Open, 10, e043864. https://doi.org/10.1136/bmjopen-2020-043864

Objectives: To devise an assessment tool to aid discharge and admission decision making in relation to children and young people in hospital urgent and emergency care facilities, and thereby improve the quality of care that patients receive, using a... Read More about Observational cohort study with internal and external validation of a predictive tool for identification of children in need of hospital admission from the emergency department : the Paediatric Admission Guidance in the Emergency department (PAGE) score.

A feasibility study of enhanced occupational therapy for children and young people with central nervous system tumours – outcomes for the families and for occupational therapy (2020)
Journal Article
Morgan, R., Estlin, E., Pizer, B., Keane, J., Bowyer, P., Nenadic, G., …Long, T. (2020). A feasibility study of enhanced occupational therapy for children and young people with central nervous system tumours – outcomes for the families and for occupational therapy. CYPF journal, Autumn(2020), 20-28

A two-year feasibility study was conducted to explore harmonisation of occupation-focused practice between two UK children’s cancer centres. The Short Child Occupational Profile (SCOPE) identified occupational needs of children with brain tumours to... Read More about A feasibility study of enhanced occupational therapy for children and young people with central nervous system tumours – outcomes for the families and for occupational therapy.

The impact of a school-based, nurse-delivered asthma health education programme on quality of life, knowledge and attitudes of Saudi children with asthma (2020)
Journal Article
Alreshidi, N., Livesley, J., Al-Kalaldeh, M., & Long, T. (2020). The impact of a school-based, nurse-delivered asthma health education programme on quality of life, knowledge and attitudes of Saudi children with asthma. Comprehensive Child and Adolescent Nursing, 45(1), 43-57. https://doi.org/10.1080/24694193.2020.1824033

Background More than two million people have asthma in Saudi Arabia: 13% aged 6-10 years. Asthma is one of the most common childhood illnesses. Little has been explored about children’s ability to learn more about their own asthma in Saudi Arabia.... Read More about The impact of a school-based, nurse-delivered asthma health education programme on quality of life, knowledge and attitudes of Saudi children with asthma.

Inter-rater reliability of paediatric emergency assessment : physiological and clinical features (2020)
Journal Article
Heal, C., Cotterill, S., Rowland, A., Garratt, N., Long, T., Brown, S., …Roland, D. (2021). Inter-rater reliability of paediatric emergency assessment : physiological and clinical features. Archives of Disease in Childhood, 106(2), 149-153. https://doi.org/10.1136/archdischild-2019-318664

Objective The Paediatric Admission Guidance in the Emergency Department (PAGE) score is an assessment tool currently in development that helps predict hospital admission using components including patient characteristics, vital signs (heart rate, te... Read More about Inter-rater reliability of paediatric emergency assessment : physiological and clinical features.

Opt-out consent in children’s emergency medicine research (2020)
Journal Article
Long, T., Rowland, A., Cotterill, S., Woby, S., Heal, C., Garratt, N., …Roland, D. (2022). Opt-out consent in children’s emergency medicine research. Comprehensive Child and Adolescent Nursing, 45(1), 31-42. https://doi.org/10.1080/24694193.2020.1812766

There is global acceptance that individuals should be allowed to decide whether or not to take part in research studies, and to do so after being informed about the nature of the research and the risk that might attach to participation. The process o... Read More about Opt-out consent in children’s emergency medicine research.

Parental involvement in decision-making in the neonatal intensive care unit : a review of the international evidence (2020)
Journal Article
Fairhurst, N., & Long, T. (2020). Parental involvement in decision-making in the neonatal intensive care unit : a review of the international evidence. Paediatrics and Child Health, 30(4), 119-123. https://doi.org/10.1016/j.paed.2020.01.001

The aim of this review was to establish the current evidence base regarding parental involvement in decision-making in the NICU. The review question was set as ‘What is known about the process of parental participation in clinical decision-making in... Read More about Parental involvement in decision-making in the neonatal intensive care unit : a review of the international evidence.

Evaluation of a choir as a non-medical intervention for children with asthma : BreathStars (2019)
Journal Article
Bowden, L., Long, T., & Henry, H. (2020). Evaluation of a choir as a non-medical intervention for children with asthma : BreathStars. Comprehensive Child and Adolescent Nursing, 43(2), 128-141. https://doi.org/10.1080/24694193.2019.1607629

A shift in current health policy has seen heightened focus on non-medical interventions which can be delivered out with formal healthcare settings, to complement and enhance the clinical care of people with long-term conditions. Asthma is a common lo... Read More about Evaluation of a choir as a non-medical intervention for children with asthma : BreathStars.

Health satisfaction and family impact of parents of children with cancer : a descriptive cross-sectional study (2019)
Journal Article
Al-Gamal, E., Long, T., & Shehadeh, J. (2019). Health satisfaction and family impact of parents of children with cancer : a descriptive cross-sectional study. Scandinavian Journal of Caring Sciences, 33(4), 815-823. https://doi.org/10.1111/scs.12677

Background: The impact on parents of coping with a child who has cancer can be both severe and multifarious. Considerable distress persists throughout the treatment phase, persisting even after completion of treatment with heightened anxiety and stre... Read More about Health satisfaction and family impact of parents of children with cancer : a descriptive cross-sectional study.

Prolonged grief disorder and its association with perceived social support and depression among university students after the death of a significant person (2018)
Journal Article
Al-Gamal, E., Bin Saeed, S., Agnes, M., & Long, T. (2018). Prolonged grief disorder and its association with perceived social support and depression among university students after the death of a significant person. Journal of Psychosocial Nursing and Mental Health Services, 57(2), 44-51. https://doi.org/10.3928/02793695-20181023-03

The response to loss through the death of a loved one may elicit emotional problems such as depression. Family, friends, significant others and academic staff have been considered to be the major sources of social support for university students. The... Read More about Prolonged grief disorder and its association with perceived social support and depression among university students after the death of a significant person.

Refining and testing the diagnostic accuracy of an assessment tool (PAT-POPS) to predict admission and discharge of children and young people who attend an emergency department : protocol for an observational study (2018)
Journal Article
observational study. BMC Pediatrics, 18(303), https://doi.org/10.1186/s12887-018-1268-7

Background: Increasing attendances by children (aged 0–16 years) to United Kingdom Emergency Departments (EDs) challenges patient safety within the National Health Service (NHS) with health professionals required to make complex judgements on whether... Read More about Refining and testing the diagnostic accuracy of an assessment tool (PAT-POPS) to predict admission and discharge of children and young people who attend an emergency department : protocol for an observational study.

The factors impacting on discharge planning in neonatal intensive care units: a systematic review (2017)
Journal Article
Alreshidi, N., & Long, T. (2017). The factors impacting on discharge planning in neonatal intensive care units: a systematic review

Background: The discharge planning process is an indispensable component of neonatal intensive care. However, this comes with various challenges. This review was undertaken to inform practice. Aim: The review was designed to identify factors that co... Read More about The factors impacting on discharge planning in neonatal intensive care units: a systematic review.

Psychometric properties of the Arabic version of the PedsQL™ Family Impact Scale (2016)
Journal Article
Al-Gamal, E., & Long, T. (2016). Psychometric properties of the Arabic version of the PedsQL™ Family Impact Scale. Journal of Research in Nursing, 21(8), 599-608. https://doi.org/10.1177/1744987116670204

Treatment of childhood cancer and its side effects can exert a negative impact on patients’ parents. A valid and reliable instrument to measure family functioning In Arabic families was considered to be a vital resource. The PedsQL Family Impact Scal... Read More about Psychometric properties of the Arabic version of the PedsQL™ Family Impact Scale.

Evaluating a community-led project for improving fathers’ and children’s wellbeing in England (2016)
Journal Article
Robertson, S., Woodhall, J., Henry, H., Rowlands, S., Esmée, H., Livesley, J., & Long, T. (2018). Evaluating a community-led project for improving fathers’ and children’s wellbeing in England. Health Promotion International, 33(3), 410-421. https://doi.org/10.1093/heapro/daw090

Although under-research compared to other settings, there is potential for the family setting to be harnessed to support the development of healthy children and societies and to reduce health inequalities. Within this setting, the role of fathers as... Read More about Evaluating a community-led project for improving fathers’ and children’s wellbeing in England.

Health-related quality of life and its association with self-esteem and fatigue among children diagnosed with cancer (2016)
Journal Article
Algamal, E., & Long, T. (2016). Health-related quality of life and its association with self-esteem and fatigue among children diagnosed with cancer. Journal of Clinical Nursing, 25(21-22), 3391-3399. https://doi.org/10.1111/jocn.13467

Aims and objectives: The aims of this study were to identify the links between self-esteem, fatigue and health-related quality of life for children and young people during and following treatment for cancer. Background: Measures to minimize adverse... Read More about Health-related quality of life and its association with self-esteem and fatigue among children diagnosed with cancer.

Skin-to-skin contact : multicultural perspectives on birth fluids and birth ‘dirt’ (2014)
Journal Article
fluids and birth ‘dirt’. International Nursing Review, 61(2), 270-277. https://doi.org/10.1111/inr.12100

Aim: To explore the experiences of women from three population groups of immediate skin-to-skin contact with their newborn baby. Method: A mixed methods approach was adopted in a phenomenological study to elicit the experiences of English, Pakist... Read More about Skin-to-skin contact : multicultural perspectives on birth fluids and birth ‘dirt’.