Outputs (2)

Methods for studying information provision, networking and communication in patient support groups (2017)
Book Chapter
Vasilica, C., & Ormandy, P. (2017). Methods for studying information provision, networking and communication in patient support groups. In C. Urquhart, F. Hamad, D. Tbaishat, & A. Yeoman (Eds.), Information Systems : Process and practice (205-233). London, UK: Facet Publishing

The chapter discusses the design and development of an online patient support group for renal patients, where co-creation of information was vital. The chapter covers the identification of information needs for this group, how users might engage with... Read More about Methods for studying information provision, networking and communication in patient support groups.

Study protocol : responding to the needs of patients with IgA nephropathy, a social media approach (2017)
Journal Article
Graham-Brown, M., Vasilica, C., Oates, T., Light, B., Clausner, C., Antonacopoulos, A., …Barratt, J. (2017). Study protocol : responding to the needs of patients with IgA nephropathy, a social media approach. Clinical Kidney Journal, 11(4), 474-478. https://doi.org/10.1093/ckj/sfx131

Background
IgA nephropathy is the most common cause of glomerulonephritis in the Western world and predominantly affects young adults. Demographically these patients are the biggest users of social media. With increasing numbers of patients turning... Read More about Study protocol : responding to the needs of patients with IgA nephropathy, a social media approach.