The supportive care needs of parents caring for a child with a rare disease : a scoping review
(2015)
Journal Article
Pelentsov, L., Laws, T., & Esterman, A. (2015). The supportive care needs of parents caring for a child with a rare disease : a scoping review. Disability and Health Journal, 8(4), 475-491. https://doi.org/10.1016/j.dhjo.2015.03.009
Background: Parents caring for a child with a rare disease report unmet needs, the origins of which are varied and complex. Few studies have systematically attempted to identify the supportive care needs of parents with a child with a rare disease co... Read More about The supportive care needs of parents caring for a child with a rare disease : a scoping review.