MS Sampson
'Deferred or chickened out?' Decision making among male carers of people with dementia
Sampson, MS; Clark, AJ
Authors
AJ Clark
Abstract
In this paper, we present new insight into the ways in which carers of people with dementia make decisions in the context of seemingly declining autonomy and freedom associated with the condition. Our focus is on the ways in which carers reflect on decisions made in different temporal contexts (day-to-day, medium- and long term). Drawing on data and analysis from in-depth interviews with male informal carers of women with mild to moderate dementia living in the northwest of England, we outline how the decision-making process is dependent on the temporality of the decisions. Arguably unsurprisingly, we found that short-term or 'day-to-day' decisions were made with input from those cared for, while longer term decisions were deferred until a point when necessity meant carers had to make decisions themselves. However, and importantly, carers were aware of the implications of how they were making decision, including the potential impact in terms of partial withdrawal, or even full denial, of autonomy of those they care for. Consequently, we argue that carers adopt a form of practised autonomy to negotiate the complexity of everyday decision making while managing longer term uncertainty and anxiety.
Citation
Sampson, M., & Clark, A. (2016). 'Deferred or chickened out?' Decision making among male carers of people with dementia. Dementia, 15(6), 1605-1621. https://doi.org/10.1177/1471301214566663
Journal Article Type | Article |
---|---|
Online Publication Date | Jan 8, 2015 |
Publication Date | Nov 1, 2016 |
Deposit Date | Feb 23, 2015 |
Journal | Dementia: The International Journal of Social Research and Practice |
Print ISSN | 1471-3012 |
Electronic ISSN | 1741-2684 |
Publisher | SAGE Publications |
Peer Reviewed | Peer Reviewed |
Volume | 15 |
Issue | 6 |
Pages | 1605-1621 |
DOI | https://doi.org/10.1177/1471301214566663 |
Publisher URL | http://dx.doi.org/10.1177/1471301214566663 |
Related Public URLs | http://www.ncbi.nlm.nih.gov/pubmed/25576163 |
Downloadable Citations
About USIR
Administrator e-mail: library-research@salford.ac.uk
This application uses the following open-source libraries:
SheetJS Community Edition
Apache License Version 2.0 (http://www.apache.org/licenses/)
PDF.js
Apache License Version 2.0 (http://www.apache.org/licenses/)
Font Awesome
SIL OFL 1.1 (http://scripts.sil.org/OFL)
MIT License (http://opensource.org/licenses/mit-license.html)
CC BY 3.0 ( http://creativecommons.org/licenses/by/3.0/)
Powered by Worktribe © 2024
Advanced Search