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Digital Health and Self-Management in Idiopathic Inflammatory Myopathies: A Missed Opportunity?

Battista, Simone; Giardulli, Benedetto; Sieiro Santos, Cristiana; Aharonov, Or; Puttaswamy, Darshan; Russell, Anne – Marie; Gupta, Latika

Digital Health and Self-Management in Idiopathic Inflammatory Myopathies: A Missed Opportunity? Thumbnail


Authors

Benedetto Giardulli

Cristiana Sieiro Santos

Or Aharonov

Darshan Puttaswamy

Anne – Marie Russell

Latika Gupta



Abstract

Purpose of Review: This paper explored the potential of digital health in idiopathic inflammatory myopathies (IIMs), with a focus on self-management. Digital self-management technology includes tailored treatment plans, symptom tracking, educational resources, enhanced communication, and support for long-term planning. Recent Findings: After arguing the importance of digital health in IIMs management, from diagnosis until treatment, our literature review revealed a notable gap in research focusing on the efficacy of digital self-management interventions for individuals with IIMs, with no randomised controlled trials or observational studies addressing this topic. Summary: Our review further highlighted the significant unmet need for research in self-management interventions for individuals with IIMs. The absence of studies underscores the necessity for collaborative efforts to address this gap and develop personalised, effective strategies for managing IIMs using digital technology. Individuals with IIMs deserve tailored self-management approaches akin to those available for other rheumatic and musculoskeletal diseases.

Citation

Battista, S., Giardulli, B., Sieiro Santos, C., Aharonov, O., Puttaswamy, D., Russell, A. –. M., & Gupta, L. (2024). Digital Health and Self-Management in Idiopathic Inflammatory Myopathies: A Missed Opportunity?. Current Rheumatology Reports, 26(11), 383-391. https://doi.org/10.1007/s11926-024-01157-6

Journal Article Type Article
Acceptance Date Jul 8, 2024
Online Publication Date Aug 8, 2024
Publication Date Nov 1, 2024
Deposit Date Sep 3, 2024
Publicly Available Date Sep 23, 2024
Journal Current Rheumatology Reports
Print ISSN 1523-3774
Publisher Springer Verlag
Peer Reviewed Peer Reviewed
Volume 26
Issue 11
Pages 383-391
DOI https://doi.org/10.1007/s11926-024-01157-6
Keywords Patient education as topic, Practice, Self-management, Attitudes, Digital health, Health knowledge, Rheumatic diseases

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http://creativecommons.org/licenses/by/4.0/

Copyright Statement
Open Access This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article’s Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article’s Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/.





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