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Developing the SELF study: A focus group with patients and the public

Littlewood, Chris; Ashton, Jon; Scott, Emma; Mawson, Sue; May, Stephen; Walters, Stephen

Authors

Jon Ashton

Emma Scott

Sue Mawson

Stephen May

Stephen Walters



Abstract

Background: Patient and public involvement (PPI) in the research process is a key feature of NHS Research and Development policy but reporting of the extent and value of PPI in relation to physiotherapy research is lacking.

Aims: To determine whether the proposed methodology within the randomized controlled trial aspect of the SELF study was acceptable to patients and to ascertain whether enhancements could be made in relation to elements that matter most to patients.

Methods: A focus group discussion was undertaken with four lay people who were currently attending physiotherapy. The data was transcribed verbatim and analysed using the framework method.

Findings: The lay members found the proposals to be generally acceptable but were able to suggest enhancements to the SELF study's design relating to recruitment, retention, blinding, and acceptability of the intervention. Additionally, we were able to recruit lay members to the trial steering committee.

Conclusion: The unique perspective offered by PPI has resulted in enhancements to the SELF study's design and a means of maintaining PPI throughout the conduct of the SELF study has been established.

Citation

Littlewood, C., Ashton, J., Scott, E., Mawson, S., May, S., & Walters, S. (2013). Developing the SELF study: A focus group with patients and the public. International Journal of Therapy and Rehabilitation, 20(4), 200-206. https://doi.org/10.12968/ijtr.2013.20.4.200

Journal Article Type Article
Online Publication Date Jun 5, 2014
Publication Date Apr 2, 2013
Deposit Date Dec 20, 2024
Journal International Journal of Therapy and Rehabilitation
Print ISSN 1741-1645
Publisher MA Healthcare
Peer Reviewed Peer Reviewed
Volume 20
Issue 4
Pages 200-206
DOI https://doi.org/10.12968/ijtr.2013.20.4.200
Keywords Focus group, Patient and public involvement (PPI), Research design