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All Outputs (77)

Reframing the narrative: an exploratory study of the concerns, expectations and experiences of parents who bring their child to an emergency department with non-urgent illness (2025)
Journal Article
Berry, R., & Long, T. (2025). Reframing the narrative: an exploratory study of the concerns, expectations and experiences of parents who bring their child to an emergency department with non-urgent illness. Comprehensive Child and Adolescent Nursing, 1-15. https://doi.org/10.1080/24694193.2024.2442984

Parenthood inevitably includes caring for a child suffering from mild-moderate illness requiring access to health care. Most childhood illnesses can be managed in the community, and parents are encouraged to attend the most suitable primary care serv... Read More about Reframing the narrative: an exploratory study of the concerns, expectations and experiences of parents who bring their child to an emergency department with non-urgent illness.

Parents’ Lived Experiences of Neonatal End of Life and Journeys With Their Grief, An Interpretative Phenomenological Study (2024)
Journal Article
Barnard, M., Smith, J., & Long, T. (in press). Parents’ Lived Experiences of Neonatal End of Life and Journeys With Their Grief, An Interpretative Phenomenological Study. Death Studies, Article Manuscript ID 240559667.R1

Medical and pharmacological advancements have influenced the ability to treat acutely ill neonates. However, complications of prematurity mean that death is unpreventable in some cases. The aim of this study was to explore parents’ lived experiences... Read More about Parents’ Lived Experiences of Neonatal End of Life and Journeys With Their Grief, An Interpretative Phenomenological Study.

Fatigue and health-related quality of life in multiple sclerosis (2024)
Journal Article
Al Gamal, E., Yaseen Hyarat, S., Al Jaried, L., Rama, E., Ahmad, M., & Long, T. (in press). Fatigue and health-related quality of life in multiple sclerosis. Journal of Research in Nursing,

BACKGROUND: Multiple sclerosis is a debilitating, chronic neurological disease with diverse symptoms. Fatigue is a major aspect of this, impacting negatively on physical functioning, productivity, general wellbeing and health-related quality of life.... Read More about Fatigue and health-related quality of life in multiple sclerosis.

Relationship between Self-management and Quality of Life among Patients with Diabetes Mellitus: A Cross-Sectional, Correlational Study (2024)
Journal Article
Al Gamal, E., Alnaser, Z., Mohammed, I., Kaliyaperumal, L., AL Qudah, A., Hyarat, S., …Long, T. (2024). Relationship between Self-management and Quality of Life among Patients with Diabetes Mellitus: A Cross-Sectional, Correlational Study. #Journal not on list, https://doi.org/10.2174/0118744346309631240517111532

Background
Diabetes is managed by prescribed medication and dietary measures to control blood sugar, but self-management is a vital aspect of this management. Self-management is a complex bio-psycho-social phenomenon, a crucial task in monitoring th... Read More about Relationship between Self-management and Quality of Life among Patients with Diabetes Mellitus: A Cross-Sectional, Correlational Study.

Systematic review of the evidence to support expert practice in the education and care of children and young people with special educational needs and disability in the UK (2022)
Journal Article
Clarry, L., Wood, A., & Long, T. (in press). Systematic review of the evidence to support expert practice in the education and care of children and young people with special educational needs and disability in the UK. Journal of Research in Special Educational Needs, https://doi.org/10.1111/1471-3802.12589

Scopus, Ebsco, ERIC, and British Education Index were interrogated in a systematic review of primary research since 2014 addressing expert practice and outcomes in education and care for young people with special educational needs and disability in t... Read More about Systematic review of the evidence to support expert practice in the education and care of children and young people with special educational needs and disability in the UK.

Sudden unexpected death in childhood in Greater Manchester (United Kingdom) : a five-year review (2015-2020) (2022)
Journal Article
Quinn, S., Dierckx, E., Long, T., & Rowland, A. (2022). Sudden unexpected death in childhood in Greater Manchester (United Kingdom) : a five-year review (2015-2020). Comprehensive Child and Adolescent Nursing, 45(4), 349-367. https://doi.org/10.1080/24694193.2022.2047828

The sudden, unexpected death of a child (SUDC) is a devastating experience. It is
vital that supportive and investigative services are effective and promote the best
outcomes for families.
Analysis of five years of data from 309 SUDC cases in Grea... Read More about Sudden unexpected death in childhood in Greater Manchester (United Kingdom) : a five-year review (2015-2020).

The need for children's advocacy centres : hearing the voices of children (2021)
Journal Article
Cook, D., Livesley, J., Long, T., Sam, M., & Rowland, A. (2021). The need for children's advocacy centres : hearing the voices of children. Comprehensive Child and Adolescent Nursing, https://doi.org/10.1080/24694193.2021.1989085

Children and young people (CYP) can be empowered to take on roles as agents of change in
their own communities. CYP want to be heard and should be actively involved in the coproduction, design and development of services aimed at them to ensure that... Read More about The need for children's advocacy centres : hearing the voices of children.

Improving outcomes for children affected by parental involvement with the criminal justice system in Scotland (2021)
Journal Article
Long, T., Lockwood, K., Loucks, N., Nugent, B., Raikes, B., Sharratt, K., & Gallagher, L. (2021). Improving outcomes for children affected by parental involvement with the criminal justice system in Scotland. Applied Research in Quality of Life, https://doi.org/10.1007/s11482-021-10012-0

With 20-27,000 children in Scotland experiencing a parent’s imprisonment and many more their parent’s involvement in the wider criminal justice system, it is vital that children’s needs and preferences are understood and acted upon. Parental imprison... Read More about Improving outcomes for children affected by parental involvement with the criminal justice system in Scotland.

A double-edged sword : children’s experiences of visiting a parent in prison in Scotland (2021)
Journal Article
Lockwood, K., Long, T., Loucks, N., Raikes, B., & Sharratt, K. (2021). A double-edged sword : children’s experiences of visiting a parent in prison in Scotland. Probation Journal, 69(2), 159-176. https://doi.org/10.1177/02645505211025592

Prison visits are recognised as an important feature of a humane prison system, providing important benefits for prisoners and their family in maintaining ties (McCarthy & Adams, 2017). Scotland has a history of penal welfarism and a right-based agen... Read More about A double-edged sword : children’s experiences of visiting a parent in prison in Scotland.

The Paediatric Admission Guidance in the Emergency Department (PAGE) supporting documentation (2021)
Other
Rowland, A., Long, T., Roland, D., Cotterill, S., Heal, C., Garratt, N., …Bonnett, L. (2021). The Paediatric Admission Guidance in the Emergency Department (PAGE) supporting documentation. Salford, UK

Funded by the National Institute for Health Research (NIHR), the study that led to the production of the Paediatric Admission Guidance in the Emergency Department (PAGE) tool was designed to support better decision-making in paediatric emergency depa... Read More about The Paediatric Admission Guidance in the Emergency Department (PAGE) supporting documentation.

Observational cohort study with internal and external validation of a predictive tool for identification of children in need of hospital admission from the emergency department : the Paediatric Admission Guidance in the Emergency department (PAGE) score (2020)
Journal Article
Rowland, A., Cotterill, S., Heal, C., Garratt, N., Long, T., Bonnett, L., …Roland, D. (2020). Observational cohort study with internal and external validation of a predictive tool for identification of children in need of hospital admission from the emergency department : the Paediatric Admission Guidance in the Emergency department (PAGE) score. BMJ Open, 10, e043864. https://doi.org/10.1136/bmjopen-2020-043864

Objectives: To devise an assessment tool to aid discharge and admission decision making in relation to children and young people in hospital urgent and emergency
care facilities, and thereby improve the quality of care that patients receive, using a... Read More about Observational cohort study with internal and external validation of a predictive tool for identification of children in need of hospital admission from the emergency department : the Paediatric Admission Guidance in the Emergency department (PAGE) score.

A feasibility study of enhanced occupational therapy for children and young people with central nervous system tumours – outcomes for the families and for occupational therapy (2020)
Journal Article
Morgan, R., Estlin, E., Pizer, B., Keane, J., Bowyer, P., Nenadic, G., …Long, T. (2020). A feasibility study of enhanced occupational therapy for children and young people with central nervous system tumours – outcomes for the families and for occupational therapy. CYPF journal, Autumn(2020), 20-28

A two-year feasibility study was conducted to explore harmonisation of occupation-focused practice between two UK children’s cancer centres. The Short Child Occupational Profile (SCOPE) identified occupational needs of children with brain tumours to... Read More about A feasibility study of enhanced occupational therapy for children and young people with central nervous system tumours – outcomes for the families and for occupational therapy.

The impact of a school-based, nurse-delivered asthma health education programme on quality of life, knowledge and attitudes of Saudi children with asthma (2020)
Journal Article
Alreshidi, N., Livesley, J., Al-Kalaldeh, M., & Long, T. (2020). The impact of a school-based, nurse-delivered asthma health education programme on quality of life, knowledge and attitudes of Saudi children with asthma. Comprehensive Child and Adolescent Nursing, 45(1), 43-57. https://doi.org/10.1080/24694193.2020.1824033

Background
More than two million people have asthma in Saudi Arabia: 13% aged 6-10 years. Asthma is one of the most common childhood illnesses. Little has been explored about children’s ability to learn more about their own asthma in Saudi Arabia.... Read More about The impact of a school-based, nurse-delivered asthma health education programme on quality of life, knowledge and attitudes of Saudi children with asthma.

Inter-rater reliability of paediatric emergency assessment : physiological and clinical features (2020)
Journal Article
Heal, C., Cotterill, S., Rowland, A., Garratt, N., Long, T., Brown, S., …Roland, D. (2021). Inter-rater reliability of paediatric emergency assessment : physiological and clinical features. Archives of Disease in Childhood, 106(2), 149-153. https://doi.org/10.1136/archdischild-2019-318664

Objective
The Paediatric Admission Guidance in the Emergency Department (PAGE) score is an assessment tool currently in development that helps predict hospital admission using components including patient characteristics, vital signs (heart rate, te... Read More about Inter-rater reliability of paediatric emergency assessment : physiological and clinical features.

Opt-out consent in children’s emergency medicine research (2020)
Journal Article
Long, T., Rowland, A., Cotterill, S., Woby, S., Heal, C., Garratt, N., …Roland, D. (2022). Opt-out consent in children’s emergency medicine research. Comprehensive Child and Adolescent Nursing, 45(1), 31-42. https://doi.org/10.1080/24694193.2020.1812766

There is global acceptance that individuals should be allowed to decide whether or not to take part in research studies, and to do so after being informed about the nature of the research and the risk that might attach to participation. The process o... Read More about Opt-out consent in children’s emergency medicine research.

Constructive Connections : building resilience of families affected by the criminal justice system : final report (2020)
Report
Long, T., Lockwood, K., Raikes, B., Sharratt, K., Loucks, N., & Nugent, B. (2020). Constructive Connections : building resilience of families affected by the criminal justice system : final report

The Stimulus for the Study
NHS Greater Glasgow and Clyde had
identified through previous research that there
was a need to engage with families that are
affected by the criminal justice system in order
to improve the experience for children an... Read More about Constructive Connections : building resilience of families affected by the criminal justice system : final report.

Parental involvement in decision-making in the neonatal intensive care unit : a review of the international evidence (2020)
Journal Article
Fairhurst, N., & Long, T. (2020). Parental involvement in decision-making in the neonatal intensive care unit : a review of the international evidence. Paediatrics and Child Health, 30(4), 119-123. https://doi.org/10.1016/j.paed.2020.01.001

The aim of this review was to establish the current evidence base regarding parental involvement in decision-making in the NICU. The review question was set as ‘What is known about the process of parental participation in clinical decision-making in... Read More about Parental involvement in decision-making in the neonatal intensive care unit : a review of the international evidence.

Realist evaluation of the impact of paediatric nurse practitioner clinics, specialist paediatric nurses, and a children’s community nursing team in deflecting attendance at emergency departments and urgent care centres by children with long-term conditions (2019)
Report
Long, T., & Mitchell, C. (2019). Realist evaluation of the impact of paediatric nurse practitioner clinics, specialist paediatric nurses, and a children’s community nursing team in deflecting attendance at emergency departments and urgent care centres by children with long-term conditions

In 2018, the Greater Manchester Children’s Health and Wellbeing Board developed a 10-point strategy to achieve its objectives, the sixth of which was to reduce unnecessary hospital attendances and admissions for children with long term conditions suc... Read More about Realist evaluation of the impact of paediatric nurse practitioner clinics, specialist paediatric nurses, and a children’s community nursing team in deflecting attendance at emergency departments and urgent care centres by children with long-term conditions.

Evaluation of a choir as a non-medical intervention for children with asthma : BreathStars (2019)
Journal Article
Bowden, L., Long, T., & Henry, H. (2020). Evaluation of a choir as a non-medical intervention for children with asthma : BreathStars. Comprehensive Child and Adolescent Nursing, 43(2), 128-141. https://doi.org/10.1080/24694193.2019.1607629

A shift in current health policy has seen heightened focus on non-medical interventions which can be delivered out with formal healthcare settings, to complement and enhance the clinical care of people with long-term conditions. Asthma is a common lo... Read More about Evaluation of a choir as a non-medical intervention for children with asthma : BreathStars.