The good, the bad and the ugly : how do people living with HIV experience care in the health system?

Amos, IA; Chester, R; Angelina, N; Merial, R

Abstract

What it is like to live with HIV in the global north has changed dramatically over
the last two decades. There have been significant developments in the treatment and
prevention of HIV, and the healthcare landscape continues to evolve. This chapter
intends to highlight some of the impact of such changes on people living with HIV,
who are accessing healthcare in the United Kingdom (UK). Initiating conversations
with the contributors to this chapter commenced by asking them to recount part of
their story using healthcare services that was particularly poignant, memorable or
important to them – what stands out to you? was the question. The good, the bad
and the ugly encounters with health and social care came forth in response. Through
sharing and discussing some of their helpful and hindering experiences of health services, HIV or otherwise, what could be seen as some of the common psychological
challenges associated with living with HIV were also illuminated. This chapter aims
to bring attention to the lived experience of people living with HIV and the care
they receive; to consider what works – and what does not. The contributors to this
chapter have all helped to achieve this aim. Other first-hand accounts of healthcare
experiences, published elsewhere, have also been drawn upon.

• Online Publication Date: Jul 30, 2020
• Publication Date: Jul 30, 2020
• Deposit Date: Jul 15, 2020
• Publicly Available Date: Jan 30, 2022
• Publisher: Routledge
• Pages: 6-29
• Book Title: Psychological perspectives in HIV care : an inter-professional approach
• ISBN: 9780415792783-(paperback);-9780415792769-(hardback);-9781315211404-(ebook)
• DOI: https://doi.org/10.4324/9781315211404-1
• Publisher URL: https://doi.org/10.4324/9781315211404-1
• Related Public URLs: https://doi.org/10.4324/9781315211404; https://www.routledge.com/