Skip to main content

Research Repository

Advanced Search

Outputs (74)

Relationship between Self-management and Quality of Life among Patients with Diabetes Mellitus: A Cross-Sectional, Correlational Study (2024)
Journal Article
Al Gamal, E., Alnaser, Z., Mohammed, I., Kaliyaperumal, L., AL Qudah, A., Hyarat, S., …Long, T. (2024). Relationship between Self-management and Quality of Life among Patients with Diabetes Mellitus: A Cross-Sectional, Correlational Study. #Journal not on list, https://doi.org/10.2174/0118744346309631240517111532

Background Diabetes is managed by prescribed medication and dietary measures to control blood sugar, but self-management is a vital aspect of this management. Self-management is a complex bio-psycho-social phenomenon, a crucial task in monitoring th... Read More about Relationship between Self-management and Quality of Life among Patients with Diabetes Mellitus: A Cross-Sectional, Correlational Study.

Systematic review of the evidence to support expert practice in the education and care of children and young people with special educational needs and disability in the UK (2022)
Journal Article
Clarry, L., Wood, A., & Long, T. (in press). Systematic review of the evidence to support expert practice in the education and care of children and young people with special educational needs and disability in the UK. Journal of Research in Special Educational Needs, https://doi.org/10.1111/1471-3802.12589

Scopus, Ebsco, ERIC, and British Education Index were interrogated in a systematic review of primary research since 2014 addressing expert practice and outcomes in education and care for young people with special educational needs and disability in t... Read More about Systematic review of the evidence to support expert practice in the education and care of children and young people with special educational needs and disability in the UK.

Sudden unexpected death in childhood in Greater Manchester (United Kingdom) : a five-year review (2015-2020) (2022)
Journal Article
Quinn, S., Dierckx, E., Long, T., & Rowland, A. (2022). Sudden unexpected death in childhood in Greater Manchester (United Kingdom) : a five-year review (2015-2020). Comprehensive Child and Adolescent Nursing, 45(4), 349-367. https://doi.org/10.1080/24694193.2022.2047828

The sudden, unexpected death of a child (SUDC) is a devastating experience. It is vital that supportive and investigative services are effective and promote the best outcomes for families. Analysis of five years of data from 309 SUDC cases in Grea... Read More about Sudden unexpected death in childhood in Greater Manchester (United Kingdom) : a five-year review (2015-2020).

The need for children's advocacy centres : hearing the voices of children (2021)
Journal Article
Cook, D., Livesley, J., Long, T., Sam, M., & Rowland, A. (2021). The need for children's advocacy centres : hearing the voices of children. Comprehensive Child and Adolescent Nursing, https://doi.org/10.1080/24694193.2021.1989085

Children and young people (CYP) can be empowered to take on roles as agents of change in their own communities. CYP want to be heard and should be actively involved in the coproduction, design and development of services aimed at them to ensure that... Read More about The need for children's advocacy centres : hearing the voices of children.

Improving outcomes for children affected by parental involvement with the criminal justice system in Scotland (2021)
Journal Article
Long, T., Lockwood, K., Loucks, N., Nugent, B., Raikes, B., Sharratt, K., & Gallagher, L. (2021). Improving outcomes for children affected by parental involvement with the criminal justice system in Scotland. Applied Research in Quality of Life, https://doi.org/10.1007/s11482-021-10012-0

With 20-27,000 children in Scotland experiencing a parent’s imprisonment and many more their parent’s involvement in the wider criminal justice system, it is vital that children’s needs and preferences are understood and acted upon. Parental imprison... Read More about Improving outcomes for children affected by parental involvement with the criminal justice system in Scotland.

A double-edged sword : children’s experiences of visiting a parent in prison in Scotland (2021)
Journal Article
Lockwood, K., Long, T., Loucks, N., Raikes, B., & Sharratt, K. (2021). A double-edged sword : children’s experiences of visiting a parent in prison in Scotland. Probation Journal, 69(2), 159-176. https://doi.org/10.1177/02645505211025592

Prison visits are recognised as an important feature of a humane prison system, providing important benefits for prisoners and their family in maintaining ties (McCarthy & Adams, 2017). Scotland has a history of penal welfarism and a right-based agen... Read More about A double-edged sword : children’s experiences of visiting a parent in prison in Scotland.

The Paediatric Admission Guidance in the Emergency Department (PAGE) supporting documentation (2021)
Other
Rowland, A., Long, T., Roland, D., Cotterill, S., Heal, C., Garratt, N., …Bonnett, L. (2021). The Paediatric Admission Guidance in the Emergency Department (PAGE) supporting documentation. Salford, UK

Funded by the National Institute for Health Research (NIHR), the study that led to the production of the Paediatric Admission Guidance in the Emergency Department (PAGE) tool was designed to support better decision-making in paediatric emergency depa... Read More about The Paediatric Admission Guidance in the Emergency Department (PAGE) supporting documentation.

Observational cohort study with internal and external validation of a predictive tool for identification of children in need of hospital admission from the emergency department : the Paediatric Admission Guidance in the Emergency department (PAGE) score (2020)
Journal Article
Rowland, A., Cotterill, S., Heal, C., Garratt, N., Long, T., Bonnett, L., …Roland, D. (2020). Observational cohort study with internal and external validation of a predictive tool for identification of children in need of hospital admission from the emergency department : the Paediatric Admission Guidance in the Emergency department (PAGE) score. BMJ Open, 10, e043864. https://doi.org/10.1136/bmjopen-2020-043864

Objectives: To devise an assessment tool to aid discharge and admission decision making in relation to children and young people in hospital urgent and emergency care facilities, and thereby improve the quality of care that patients receive, using a... Read More about Observational cohort study with internal and external validation of a predictive tool for identification of children in need of hospital admission from the emergency department : the Paediatric Admission Guidance in the Emergency department (PAGE) score.

A feasibility study of enhanced occupational therapy for children and young people with central nervous system tumours – outcomes for the families and for occupational therapy (2020)
Journal Article
Morgan, R., Estlin, E., Pizer, B., Keane, J., Bowyer, P., Nenadic, G., …Long, T. (2020). A feasibility study of enhanced occupational therapy for children and young people with central nervous system tumours – outcomes for the families and for occupational therapy. CYPF journal, Autumn(2020), 20-28

A two-year feasibility study was conducted to explore harmonisation of occupation-focused practice between two UK children’s cancer centres. The Short Child Occupational Profile (SCOPE) identified occupational needs of children with brain tumours to... Read More about A feasibility study of enhanced occupational therapy for children and young people with central nervous system tumours – outcomes for the families and for occupational therapy.

The impact of a school-based, nurse-delivered asthma health education programme on quality of life, knowledge and attitudes of Saudi children with asthma (2020)
Journal Article
Alreshidi, N., Livesley, J., Al-Kalaldeh, M., & Long, T. (2020). The impact of a school-based, nurse-delivered asthma health education programme on quality of life, knowledge and attitudes of Saudi children with asthma. Comprehensive Child and Adolescent Nursing, 45(1), 43-57. https://doi.org/10.1080/24694193.2020.1824033

Background More than two million people have asthma in Saudi Arabia: 13% aged 6-10 years. Asthma is one of the most common childhood illnesses. Little has been explored about children’s ability to learn more about their own asthma in Saudi Arabia.... Read More about The impact of a school-based, nurse-delivered asthma health education programme on quality of life, knowledge and attitudes of Saudi children with asthma.

Inter-rater reliability of paediatric emergency assessment : physiological and clinical features (2020)
Journal Article
Heal, C., Cotterill, S., Rowland, A., Garratt, N., Long, T., Brown, S., …Roland, D. (2021). Inter-rater reliability of paediatric emergency assessment : physiological and clinical features. Archives of Disease in Childhood, 106(2), 149-153. https://doi.org/10.1136/archdischild-2019-318664

Objective The Paediatric Admission Guidance in the Emergency Department (PAGE) score is an assessment tool currently in development that helps predict hospital admission using components including patient characteristics, vital signs (heart rate, te... Read More about Inter-rater reliability of paediatric emergency assessment : physiological and clinical features.

Opt-out consent in children’s emergency medicine research (2020)
Journal Article
Long, T., Rowland, A., Cotterill, S., Woby, S., Heal, C., Garratt, N., …Roland, D. (2022). Opt-out consent in children’s emergency medicine research. Comprehensive Child and Adolescent Nursing, 45(1), 31-42. https://doi.org/10.1080/24694193.2020.1812766

There is global acceptance that individuals should be allowed to decide whether or not to take part in research studies, and to do so after being informed about the nature of the research and the risk that might attach to participation. The process o... Read More about Opt-out consent in children’s emergency medicine research.

Constructive Connections : building resilience of families affected by the criminal justice system : final report (2020)
Report
Long, T., Lockwood, K., Raikes, B., Sharratt, K., Loucks, N., & Nugent, B. (2020). Constructive Connections : building resilience of families affected by the criminal justice system : final report

The Stimulus for the Study NHS Greater Glasgow and Clyde had identified through previous research that there was a need to engage with families that are affected by the criminal justice system in order to improve the experience for children an... Read More about Constructive Connections : building resilience of families affected by the criminal justice system : final report.

Parental involvement in decision-making in the neonatal intensive care unit : a review of the international evidence (2020)
Journal Article
Fairhurst, N., & Long, T. (2020). Parental involvement in decision-making in the neonatal intensive care unit : a review of the international evidence. Paediatrics and Child Health, 30(4), 119-123. https://doi.org/10.1016/j.paed.2020.01.001

The aim of this review was to establish the current evidence base regarding parental involvement in decision-making in the NICU. The review question was set as ‘What is known about the process of parental participation in clinical decision-making in... Read More about Parental involvement in decision-making in the neonatal intensive care unit : a review of the international evidence.

Realist evaluation of the impact of paediatric nurse practitioner clinics, specialist paediatric nurses, and a children’s community nursing team in deflecting attendance at emergency departments and urgent care centres by children with long-term conditions (2019)
Report
Long, T., & Mitchell, C. (2019). Realist evaluation of the impact of paediatric nurse practitioner clinics, specialist paediatric nurses, and a children’s community nursing team in deflecting attendance at emergency departments and urgent care centres by children with long-term conditions

In 2018, the Greater Manchester Children’s Health and Wellbeing Board developed a 10-point strategy to achieve its objectives, the sixth of which was to reduce unnecessary hospital attendances and admissions for children with long term conditions suc... Read More about Realist evaluation of the impact of paediatric nurse practitioner clinics, specialist paediatric nurses, and a children’s community nursing team in deflecting attendance at emergency departments and urgent care centres by children with long-term conditions.

Evaluation of a choir as a non-medical intervention for children with asthma : BreathStars (2019)
Journal Article
Bowden, L., Long, T., & Henry, H. (2020). Evaluation of a choir as a non-medical intervention for children with asthma : BreathStars. Comprehensive Child and Adolescent Nursing, 43(2), 128-141. https://doi.org/10.1080/24694193.2019.1607629

A shift in current health policy has seen heightened focus on non-medical interventions which can be delivered out with formal healthcare settings, to complement and enhance the clinical care of people with long-term conditions. Asthma is a common lo... Read More about Evaluation of a choir as a non-medical intervention for children with asthma : BreathStars.

Health satisfaction and family impact of parents of children with cancer : a descriptive cross-sectional study (2019)
Journal Article
Al-Gamal, E., Long, T., & Shehadeh, J. (2019). Health satisfaction and family impact of parents of children with cancer : a descriptive cross-sectional study. Scandinavian Journal of Caring Sciences, 33(4), 815-823. https://doi.org/10.1111/scs.12677

Background: The impact on parents of coping with a child who has cancer can be both severe and multifarious. Considerable distress persists throughout the treatment phase, persisting even after completion of treatment with heightened anxiety and stre... Read More about Health satisfaction and family impact of parents of children with cancer : a descriptive cross-sectional study.

Prolonged grief disorder and its association with perceived social support and depression among university students after the death of a significant person (2018)
Journal Article
Al-Gamal, E., Bin Saeed, S., Agnes, M., & Long, T. (2018). Prolonged grief disorder and its association with perceived social support and depression among university students after the death of a significant person. Journal of Psychosocial Nursing and Mental Health Services, 57(2), 44-51. https://doi.org/10.3928/02793695-20181023-03

The response to loss through the death of a loved one may elicit emotional problems such as depression. Family, friends, significant others and academic staff have been considered to be the major sources of social support for university students. The... Read More about Prolonged grief disorder and its association with perceived social support and depression among university students after the death of a significant person.

Refining and testing the diagnostic accuracy of an assessment tool (PAT-POPS) to predict admission and discharge of children and young people who attend an emergency department : protocol for an observational study (2018)
Journal Article
observational study. BMC Pediatrics, 18(303), https://doi.org/10.1186/s12887-018-1268-7

Background: Increasing attendances by children (aged 0–16 years) to United Kingdom Emergency Departments (EDs) challenges patient safety within the National Health Service (NHS) with health professionals required to make complex judgements on whether... Read More about Refining and testing the diagnostic accuracy of an assessment tool (PAT-POPS) to predict admission and discharge of children and young people who attend an emergency department : protocol for an observational study.

The factors impacting on discharge planning in neonatal intensive care units: a systematic review (2017)
Journal Article
Alreshidi, N., & Long, T. (2017). The factors impacting on discharge planning in neonatal intensive care units: a systematic review

Background: The discharge planning process is an indispensable component of neonatal intensive care. However, this comes with various challenges. This review was undertaken to inform practice. Aim: The review was designed to identify factors that co... Read More about The factors impacting on discharge planning in neonatal intensive care units: a systematic review.

Psychometric properties of the Arabic version of the PedsQL™ Family Impact Scale (2016)
Journal Article
Al-Gamal, E., & Long, T. (2016). Psychometric properties of the Arabic version of the PedsQL™ Family Impact Scale. Journal of Research in Nursing, 21(8), 599-608. https://doi.org/10.1177/1744987116670204

Treatment of childhood cancer and its side effects can exert a negative impact on patients’ parents. A valid and reliable instrument to measure family functioning In Arabic families was considered to be a vital resource. The PedsQL Family Impact Scal... Read More about Psychometric properties of the Arabic version of the PedsQL™ Family Impact Scale.

Evaluating a community-led project for improving fathers’ and children’s wellbeing in England (2016)
Journal Article
Robertson, S., Woodhall, J., Henry, H., Rowlands, S., Esmée, H., Livesley, J., & Long, T. (2018). Evaluating a community-led project for improving fathers’ and children’s wellbeing in England. Health Promotion International, 33(3), 410-421. https://doi.org/10.1093/heapro/daw090

Although under-research compared to other settings, there is potential for the family setting to be harnessed to support the development of healthy children and societies and to reduce health inequalities. Within this setting, the role of fathers as... Read More about Evaluating a community-led project for improving fathers’ and children’s wellbeing in England.

Music-making with hospitalised children outcomes for children, families, hospital staff and musicians from LIME Medical Notes (2) and Songbirds projects : A research report (2016)
Report
outcomes for children, families, hospital staff and musicians from LIME Medical Notes (2) and Songbirds projects : A research report

Children account for 21% of the population in the United Kingdom (Office for National Statistics 2015). Each year, one in fifteen children will be admitted to hospital, many of whom will have complex healthcare needs; a significant proportion of thes... Read More about Music-making with hospitalised children outcomes for children, families, hospital staff and musicians from LIME Medical Notes (2) and Songbirds projects : A research report.

Health-related quality of life and its association with self-esteem and fatigue among children diagnosed with cancer (2016)
Journal Article
Algamal, E., & Long, T. (2016). Health-related quality of life and its association with self-esteem and fatigue among children diagnosed with cancer. Journal of Clinical Nursing, 25(21-22), 3391-3399. https://doi.org/10.1111/jocn.13467

Aims and objectives: The aims of this study were to identify the links between self-esteem, fatigue and health-related quality of life for children and young people during and following treatment for cancer. Background: Measures to minimize adverse... Read More about Health-related quality of life and its association with self-esteem and fatigue among children diagnosed with cancer.

Child maltreatment (2016)
Book Chapter
Long, T. (2016). Child maltreatment. In Growing up in the UK 2016 Update. BMA

Research ethics (2015)
Book Chapter
Johnson, M., & Long, T. (2015). Research ethics. In K. Gerrish, & J. Lathlean (Eds.), The Research Process in Nursing 7th Edition (31-42). London: Wiley Blackwell

Comparison of the expressed experiences of survivors of childhood medulloblastoma with measures of health and quality of life, and with issues identified in consultations (2015)
Report
Long, T., Estlin, E., Nenadic, G., Keane, J., Gattamaneni, R., McCabe, M., …Deghan, A. (2015). Comparison of the expressed experiences of survivors of childhood medulloblastoma with measures of health and quality of life, and with issues identified in consultations

When the study was planned, the Young Oncology Unit at The Christie housed both the adult and paediatric follow-up clinics for patients who have been diagnosed with a tumour of the central nervous system (CNS) in childhood and adolescence or young ad... Read More about Comparison of the expressed experiences of survivors of childhood medulloblastoma with measures of health and quality of life, and with issues identified in consultations.

Skin-to-skin contact : multicultural perspectives on birth fluids and birth ‘dirt’ (2014)
Journal Article
fluids and birth ‘dirt’. International Nursing Review, 61(2), 270-277. https://doi.org/10.1111/inr.12100

Aim: To explore the experiences of women from three population groups of immediate skin-to-skin contact with their newborn baby. Method: A mixed methods approach was adopted in a phenomenological study to elicit the experiences of English, Pakist... Read More about Skin-to-skin contact : multicultural perspectives on birth fluids and birth ‘dirt’.

Four-year longitudinal impact evaluation of the action for children UK neglect project : outcomes for the children, families, action for children, and the UK (2013)
Journal Article
Long, T., Murphy, M., Fallon, D., Livesley, J., Devitt, P., McLoughlin, M., & Cavanagh, M. (2014). Four-year longitudinal impact evaluation of the action for children UK neglect project : outcomes for the children, families, action for children, and the UK. Child Abuse and Neglect, 38(8), 1358-1368. https://doi.org/10.1016/j.chiabu.2013.10.008

Neglect has a devastating impact on children and is the most pervasive form of child maltreatment in the United Kingdom. The study purpose was to establish outcomes for neglected children following structured assessment and intervention to ascertain... Read More about Four-year longitudinal impact evaluation of the action for children UK neglect project : outcomes for the children, families, action for children, and the UK.

The MM-CGI cerebral palsy : modification and testing of an instrument to measure anticipatory grief in parents whose child has cerebral palsy (2013)
Journal Article
Al-Gamal, E., & Long, T. (2013). The MM-CGI cerebral palsy : modification and testing of an instrument to measure anticipatory grief in parents whose child has cerebral palsy. Journal of Clinical Nursing, 23(13-14), 1810-1819. https://doi.org/10.1111/jocn.12218

Aims and objectives: To establish the potential of a modified version of the MM-CGI Childhood Cancer to assess anticipatory grief in parents of children with cerebral palsy, to amend the existing scale for use with the specific patient group, to test... Read More about The MM-CGI cerebral palsy : modification and testing of an instrument to measure anticipatory grief in parents whose child has cerebral palsy.

The effectiveness of frenulotomy on infant-feeding outcomes : a systematic review (2013)
Journal Article
Finigan, V., & Long, T. (2013). The effectiveness of frenulotomy on infant-feeding outcomes : a systematic review. Evidence Based Midwifery, 11(2), 40-45

Background: Tongue-tie is a congenital anomaly in which the short lingual frenulum or highly attached genioglossus muscle restricts tongue movement. NICE (2005) called for robust clinical trials to be conducted on frenulotomy, the surgical procedure... Read More about The effectiveness of frenulotomy on infant-feeding outcomes : a systematic review.

Children’s misunderstandings of hazard warning signs in the new globally harmonised system for classification and labelling (2013)
Journal Article
Latham, G., Long, T., & Devitt, P. (2013). Children’s misunderstandings of hazard warning signs in the new globally harmonised system for classification and labelling. Issues in Comprehensive Pediatric Nursing, 36(4), 262-278. https://doi.org/10.3109/01460862.2013.825659

Accidental chemical poisoning causes more than 35,000 child deaths every year across the world, and it leads to disease, disability, and suffering for many more children. Children’s ignorance of dangers and their failure to interpret hazard warning s... Read More about Children’s misunderstandings of hazard warning signs in the new globally harmonised system for classification and labelling.

A transatlantic comparative study of acute dysphagia services (2012)
Journal Article
Newman, R., & Long, T. (2012). A transatlantic comparative study of acute dysphagia services. American journal of medicine and medical sciences (Print), 2(5), 96-102. https://doi.org/10.5923/j.ajmms.20120205.02

This was the first study to compare acute dysphagia service provision directly between the UK and the US. It examined variations in acute dysphagia services between the UK and the US, determined clinicians’ perceptions of their own service and that o... Read More about A transatlantic comparative study of acute dysphagia services.

Psychological distress and perceived support among Jordanian parents living with a child with cerebral palsy : a cross-sectional study (2012)
Journal Article
Al-Gamal, E., & Long, T. (2012). Psychological distress and perceived support among Jordanian parents living with a child with cerebral palsy : a cross-sectional study. Scandinavian Journal of Caring Sciences, 27(3), 624-631. https://doi.org/10.1111/j.1471-6712.2012.01071.x

Background: Cerebral palsy, with a prevalence in Europe of 2–2.5 per 1000 live births, is the most common severe physical disability affecting children. While many parents have positive perceptions of their disabled children, caring for a child with... Read More about Psychological distress and perceived support among Jordanian parents living with a child with cerebral palsy : a cross-sectional study.

The experiences of women from three diverse population groups of immediate skin-to-skin contact with their newborn baby : selected outcomes relating to establishing breastfeeding (2012)
Journal Article
Finigan, V., & Long, T. (2012). The experiences of women from three diverse population groups of immediate skin-to-skin contact with their newborn baby : selected outcomes relating to establishing breastfeeding. Evidence Based Midwifery, 10(4), 125-130

Background. The physiological basis for the benefits of skin-to-skin (SSC) contact has been established for some time, although often the restrictive context of midwifery practice has been shown to force midwives to prioritise productivity and effici... Read More about The experiences of women from three diverse population groups of immediate skin-to-skin contact with their newborn baby : selected outcomes relating to establishing breastfeeding.

Understanding the influences on self-confidence among first-year undergraduate nursing students in Ireland (2012)
Journal Article
Chesser-Smyth, P., & Long, T. (2013). Understanding the influences on self-confidence among first-year undergraduate nursing students in Ireland. Journal of Advanced Nursing, 69(1), 145-157. https://doi.org/10.1111/j.1365-2648.2012.06001.x

Aim. To report a mixed-methods study of the development of self-confidence in Irish nursing students undertaking the first year of an undergraduate nursing programme. Background. Self-confidence underpins nurses’ competence to carry out care effe... Read More about Understanding the influences on self-confidence among first-year undergraduate nursing students in Ireland.

The effectiveness of occupational therapy intervention for children with developmental coordination disorder : review of the qualitative literature (2012)
Journal Article
Morgan, R., & Long, T. (2012). The effectiveness of occupational therapy intervention for children with developmental coordination disorder : review of the qualitative literature. British Journal of Occupational Therapy, 75(1), 10-18. https://doi.org/10.4276/03082212X13261082051337

Introduction: This review investigates qualitative evidence regarding the effectiveness of motor interventions for children with developmental coordination disorder (DCD). Method: Six databases were searched for qualitative studies conducted with... Read More about The effectiveness of occupational therapy intervention for children with developmental coordination disorder : review of the qualitative literature.

Origins, purpose and future of Sure Start children’s centres in England (2011)
Journal Article
Camps, L., & Long, T. (2011). Origins, purpose and future of Sure Start children’s centres in England. Nursing Children and Young People, 24(1), 26-30

Sure Start began in England under the UK’s former Labour government as an intervention for families with young children, particularly targeting the most deprived in society. More than a decade later the service is under threat in many parts of th... Read More about Origins, purpose and future of Sure Start children’s centres in England.

The future of children’s nursing research : development, drudgery or demise? (2011)
Journal Article
Long, T. (2011). The future of children’s nursing research : development, drudgery or demise?. British Journal of Nursing, 20(14), 728-842

This paper, based on a presentation to the UK Association of Chief Children’s Nurses, is the author’s personal reflection on the nature and future of children’s nursing research. Key constitutive elements of this concept are considered to arrive at t... Read More about The future of children’s nursing research : development, drudgery or demise?.

Anticipatory grieving in parents living with a child with cancer (2010)
Journal Article
Al-Gamal, E., & Long, T. (2010). Anticipatory grieving in parents living with a child with cancer. Journal of Advanced Nursing, 66(9), 1980-1990. https://doi.org/10.1111/j.1365-2648.2010.05381.x

Aim. This paper is a report of a comparative study of anticipatory grief of parents of children newly diagnosed with cancer and those whose children were diagnosed 6–12 months earlier. Background. Public perceptions of cancer as a fatal illness pe... Read More about Anticipatory grieving in parents living with a child with cancer.

Development of a modified instrument to measure anticipatory grieving in Jordanian parents of children diagnosed with cancer : the Marwit and Meuser caregiver inventory childhood cancer (2009)
Journal Article
Al-Gamal, E., Long, T., & Livesley, J. (2009). Development of a modified instrument to measure anticipatory grieving in Jordanian parents of children diagnosed with cancer : the Marwit and Meuser caregiver inventory childhood cancer. Cancer Nursing, 32(3), 211-219. https://doi.org/10.1097/NCC.0b013e31819a2ae4

The purpose of this article is to report on the development and field testing for validity and reliability of a modified version of the Marwit and Meuser Caregiver Inventory (MM-CGI) for the assessment of anticipatory grief among Jordanian parents of... Read More about Development of a modified instrument to measure anticipatory grieving in Jordanian parents of children diagnosed with cancer : the Marwit and Meuser caregiver inventory childhood cancer.

A community health needs evaluation : improving uptake of services at a children's centre in a deprived and geographically isolated town (2008)
Journal Article
Long, T., Fallon, D., Devitt, P., Oak, E., Murphy, M., & Dugdill, L. (2008). A community health needs evaluation : improving uptake of services at a children's centre in a deprived and geographically isolated town. Journal of children's and young people's nursing, 2(3), 108-114. https://doi.org/10.12968/jcyn.2008.2.3.28702

The evaluation identified health and social trends for this deprived and geographically isolated area, elicited perceived health needs of under-fives in the local community, and informed development and improvement of services offered by a children’s... Read More about A community health needs evaluation : improving uptake of services at a children's centre in a deprived and geographically isolated town.

Evaluation of educational preparation for cancer and palliative care nursing for children and adolescents in England (2008)
Journal Article
Long, T., Hale, C., Sanderson, L., Tomlinson, P., & Carr, K. (2008). Evaluation of educational preparation for cancer and palliative care nursing for children and adolescents in England. European Journal of Oncology Nursing, 12(1), 65-74. https://doi.org/10.1016/j.ejon.2007.05.003

This paper reports the findings of a study which was carried out to evaluate the educational preparation of cancer and palliative care nurses in England. The study was carried out in three stages and covered the following areas; documentary analysi... Read More about Evaluation of educational preparation for cancer and palliative care nursing for children and adolescents in England.

Identifying the attributes of threshold and higher level nursing practice for children's cancer and palliative care nurses : the views of children, their parents and other stakeholders (2008)
Journal Article
Hale, C., Long, T., Sanderson, L., & Carr, K. (2008). Identifying the attributes of threshold and higher level nursing practice for children's cancer and palliative care nurses : the views of children, their parents and other stakeholders. Journal of Research in Nursing, 13(1), 9-20. https://doi.org/10.1177/+1744987107086099

This paper presents the findings of the third stage of a research study, the overall aim of which was to evaluate the educational preparation for cancer and palliative care nursing for children and adolescents in England. The specific aim of this... Read More about Identifying the attributes of threshold and higher level nursing practice for children's cancer and palliative care nurses : the views of children, their parents and other stakeholders.

Ethics approval, guarantees of quality, and the meddlesome editor (2007)
Journal Article
Long, T., & Fallon, D. (2007). Ethics approval, guarantees of quality, and the meddlesome editor. Journal of Clinical Nursing, 16(8), 1398-1404. https://doi.org/10.1111/j.1365-2702.2006.01918.x

Aims. The authors aim to challenge accepted views about the dissemination of ethically acceptable research, presenting a case for adopting an alternative strategy. Background. A previous editorial proposed additional ethical censorship of articles... Read More about Ethics approval, guarantees of quality, and the meddlesome editor.

Standards – a new baseline for interagency training and education to safeguard children? (2006)
Journal Article
Murphy, M., Shardlow, S., Davis, C., Race, D., Johnson, M., & Long, T. (2006). Standards – a new baseline for interagency training and education to safeguard children?. Child Abuse Review, 15(2), 138-151. https://doi.org/10.1002/car.934

In April 2003, a research team drawn from the nursing (Salford Centre for Nursing, Midwifery and Collaborative Research) and social work (Salford Centre for Social Work Research) research centres at the University of Salford undertook a research proj... Read More about Standards – a new baseline for interagency training and education to safeguard children?.

An evaluation of educational preparation for cancer and palliative care nursing for children and adolescents : issues in the assessment of practice (2006)
Journal Article
Hale, C., Long, T., Sanderson, L., Tomlinson, P., & Carr, K. (2006). An evaluation of educational preparation for cancer and palliative care nursing for children and adolescents : issues in the assessment of practice. Nurse Education Today, 26(7), 528-537. https://doi.org/10.1016/j.nedt.2006.01.007

This paper reports on findings from an externally funded research study designed to map and analyse the educational preparation for cancer and palliative care nursing for children and adolescents. The courses reviewed in the whole study, were the Eng... Read More about An evaluation of educational preparation for cancer and palliative care nursing for children and adolescents : issues in the assessment of practice.

Standards for education and training for interagency working in child protection in the UK : implications for nurses, midwives and health visitors (2005)
Journal Article
Long, T., Davis, C., Johnson, M., Murphy, M., Race, D., & Shardlow, S. (2006). Standards for education and training for interagency working in child protection in the UK : implications for nurses, midwives and health visitors. Nurse Education Today, 26(1), 11-22. https://doi.org/10.1016/j.nedt.2005.05.011

This article presents a discussion of key issues for the education of nurses, midwives and health visitors following the completion of a Department of Health funded project, managed by the General Social Care Council and conducted jointly by two r... Read More about Standards for education and training for interagency working in child protection in the UK : implications for nurses, midwives and health visitors.

Evaluation of educational programmes for paediatric cancer nursing in England (2003)
Journal Article
Sanderson, L., Long, T., & Hale, C. (2004). Evaluation of educational programmes for paediatric cancer nursing in England. European Journal of Oncology Nursing, 8(2), 138-147. https://doi.org/10.1016/S1462-3889%2803%2900072-3

The results of part of a larger study to evaluate educational provision for paediatric oncology and palliative care nursing in England are presented here. Mapping of cancer care provision, based upon the English National Board 240 programme, was und... Read More about Evaluation of educational programmes for paediatric cancer nursing in England.

Research in Nurse Education Today : do we meet our aims and scope? (2002)
Journal Article
Long, T., & Johnson, M. (2002). Research in Nurse Education Today : do we meet our aims and scope?. Nurse Education Today, 22(1), 85-93. https://doi.org/10.1054/nedt.2001.0717

All issues of Nurse Education Today between January 1996 and July 2001 were examined manually and categorized as `research' or other forms of scholarship. A total of 356 articles were reviewed and 193 of these were considered to be some form of resea... Read More about Research in Nurse Education Today : do we meet our aims and scope?.

Confusing rhetoric with reality : achieving a balanced skill mix of nurses working with children (2002)
Journal Article
Smith, J., & Long, T. (2002). Confusing rhetoric with reality : achieving a balanced skill mix of nurses working with children. Journal of Advanced Nursing, 40(3), 258-266. https://doi.org/10.1046/j.1365-2648.2002.02367.x

Background and rationale. The option of separate registration in children’s nursing has been a feature of nursing in the United Kingdom since 1919, but this is currently under review. The recently superseded governing body of nursing, the United King... Read More about Confusing rhetoric with reality : achieving a balanced skill mix of nurses working with children.

Excessive infantile crying: a review of the literature (2001)
Journal Article
Long, T. (2001). Excessive infantile crying: a review of the literature. Journal of Child Health Care, 5(3), 111-116. https://doi.org/10.1177/136749350100500304

Excessive infantile crying is a widespread problem which exerts a serious impact on families' lives. ■ The prevalence, cause, and treatment of the problem have been addressed in the literature for many years but with varying degrees of success. ■... Read More about Excessive infantile crying: a review of the literature.

Living and coping with excessive infantile crying (2001)
Journal Article
Long, T., & Johnson, M. (2001). Living and coping with excessive infantile crying. Journal of Advanced Nursing, 34(2), 155-162. https://doi.org/10.1046/j.1365-2648.2001.01740.x

Aim: The aim of the study was to elicit from parents how they lived and coped with a baby who cries excessively. It sought to identify factors which made coping more difficult, as well as interventions perceived by parents to be effective in improvin... Read More about Living and coping with excessive infantile crying.

Arguments for 'British Pluralism' in qualitative health research (2001)
Journal Article
Johnson, M., Long, T., & White, A. (2001). Arguments for 'British Pluralism' in qualitative health research. Journal of Advanced Nursing, 33(2), 243-249. https://doi.org/10.1111/j.1365-2648.2001.01659.x

Aims of the study. This paper examines the argument that certain qualitative research methods can be used in 'pure' forms. Whilst rigid adherence to particular published procedures might be possible, we argue that in many cases this is neither necess... Read More about Arguments for 'British Pluralism' in qualitative health research.

Rigour, reliability, and validity in qualitative research (2000)
Journal Article
Long, T., & Johnson, M. (2000). Rigour, reliability, and validity in qualitative research. Clinical Effectiveness in Nursing, 4(1), 30-37. https://doi.org/10.1054/cein.2000.0106

This article addresses issues relating to rigour within qualitative research, beginning with the need for rigour at all in such studies.The concept of reliability is then analysed, establishing the traditional understanding of the term, and evaluati... Read More about Rigour, reliability, and validity in qualitative research.

Moral guidance; moral philosophy; and moral issues in practice (1999)
Journal Article
Holt, J., & Long, T. (1999). Moral guidance; moral philosophy; and moral issues in practice. Nurse Education Today, 19(3), 246-249. https://doi.org/10.1016/S0260-6917%2899%2980010-0

Approaches to teaching ethics to nurses have been debated in literature for some years. Three issues in particular are commonly addressed: the intentions of such teaching; the value of examples and case studies; and the compatibility of philosophical... Read More about Moral guidance; moral philosophy; and moral issues in practice.

To protect the public and ensure justice is done : an examination of the Philip Donnelly case (1992)
Journal Article
Long, T. (1992). To protect the public and ensure justice is done : an examination of the Philip Donnelly case. Journal of Advanced Nursing, 17(1), 5-9. https://doi.org/10.1111/j.1365-2648.1992.tb01811.x

This paper constitutes a discussion of a case of sexual abuse of children by a nurse brought before the UKCC Professional Conduct Committee. Judgement was first deferred, and later the nurse was allowed to remain on the register and to practise as a... Read More about To protect the public and ensure justice is done : an examination of the Philip Donnelly case.

Multimedia approach to research methods teaching at Masters level
Report
Haigh, C., Enright, S., & Long, T. Multimedia approach to research methods teaching at Masters level

The project is designed to provide a novel, creative approach to the redevelopment of a masters-level research methods module. A learning resource pack will be developed consisting of a reader and a series of time-limited CD-ROMs, each of which wo... Read More about Multimedia approach to research methods teaching at Masters level.