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Professor Tony Long's Outputs (54)

Parents’ lived experience of support through their neonate’s end of life and grief journey: An interpretative phenomenology study (2025)
Journal Article

Medical and pharmacological advancements have influenced the ability to treat acutely ill neonates. However, complications of prematurity mean that death is unpreventable in some cases. The aim of this study was to explore parents’ lived experiences... Read More about Parents’ lived experience of support through their neonate’s end of life and grief journey: An interpretative phenomenology study.

Reframing the Narrative: An Exploratory Study of the Concerns, Expectations and Experiences of Parents Who Bring Their Child to an Emergency Department with Non-Urgent Illness (2025)
Journal Article

Parenthood inevitably includes caring for a child suffering from mild-moderate illness requiring access to health care. Most childhood illnesses can be managed in the community, and parents are encouraged to attend the most suitable primary care serv... Read More about Reframing the Narrative: An Exploratory Study of the Concerns, Expectations and Experiences of Parents Who Bring Their Child to an Emergency Department with Non-Urgent Illness.

Relationship between Self-management and Quality of Life among Patients with Diabetes Mellitus: A Cross-Sectional, Correlational Study (2024)
Journal Article

Background
Diabetes is managed by prescribed medication and dietary measures to control blood sugar, but self-management is a vital aspect of this management. Self-management is a complex bio-psycho-social phenomenon, a crucial task in monitoring th... Read More about Relationship between Self-management and Quality of Life among Patients with Diabetes Mellitus: A Cross-Sectional, Correlational Study.

Systematic review of the evidence to support expert practice in the education and care of children and young people with special educational needs and disability in the UK (2022)
Journal Article

Scopus, Ebsco, ERIC, and British Education Index were interrogated in a systematic review of primary research since 2014 addressing expert practice and outcomes in education and care for young people with special educational needs and disability in t... Read More about Systematic review of the evidence to support expert practice in the education and care of children and young people with special educational needs and disability in the UK.

Sudden unexpected death in childhood in Greater Manchester (United Kingdom) : a five-year review (2015-2020) (2022)
Journal Article

The sudden, unexpected death of a child (SUDC) is a devastating experience. It is
vital that supportive and investigative services are effective and promote the best
outcomes for families.
Analysis of five years of data from 309 SUDC cases in Grea... Read More about Sudden unexpected death in childhood in Greater Manchester (United Kingdom) : a five-year review (2015-2020).

Improving outcomes for children affected by parental involvement with the criminal justice system in Scotland (2021)
Journal Article

With 20-27,000 children in Scotland experiencing a parent’s imprisonment and many more their parent’s involvement in the wider criminal justice system, it is vital that children’s needs and preferences are understood and acted upon. Parental imprison... Read More about Improving outcomes for children affected by parental involvement with the criminal justice system in Scotland.

Observational cohort study with internal and external validation of a predictive tool for identification of children in need of hospital admission from the emergency department : the Paediatric Admission Guidance in the Emergency department (PAGE) score (2020)
Journal Article

Objectives: To devise an assessment tool to aid discharge and admission decision making in relation to children and young people in hospital urgent and emergency
care facilities, and thereby improve the quality of care that patients receive, using a... Read More about Observational cohort study with internal and external validation of a predictive tool for identification of children in need of hospital admission from the emergency department : the Paediatric Admission Guidance in the Emergency department (PAGE) score.

A feasibility study of enhanced occupational therapy for children and young people with central nervous system tumours – outcomes for the families and for occupational therapy (2020)
Journal Article

A two-year feasibility study was conducted to explore harmonisation of occupation-focused practice between two UK children’s cancer centres. The Short Child Occupational Profile (SCOPE) identified occupational needs of children with brain tumours to... Read More about A feasibility study of enhanced occupational therapy for children and young people with central nervous system tumours – outcomes for the families and for occupational therapy.

The impact of a school-based, nurse-delivered asthma health education programme on quality of life, knowledge and attitudes of Saudi children with asthma (2020)
Journal Article
Alreshidi, N., Livesley, J., Al-Kalaldeh, M., & Long, T. (2020). The impact of a school-based, nurse-delivered asthma health education programme on quality of life, knowledge and attitudes of Saudi children with asthma. Comprehensive Child and Adolescent Nursing, 45(1), 43-57. https://doi.org/10.1080/24694193.2020.1824033

Background
More than two million people have asthma in Saudi Arabia: 13% aged 6-10 years. Asthma is one of the most common childhood illnesses. Little has been explored about children’s ability to learn more about their own asthma in Saudi Arabia.... Read More about The impact of a school-based, nurse-delivered asthma health education programme on quality of life, knowledge and attitudes of Saudi children with asthma.

Parental involvement in decision-making in the neonatal intensive care unit : a review of the international evidence (2020)
Journal Article

The aim of this review was to establish the current evidence base regarding parental involvement in decision-making in the NICU. The review question was set as ‘What is known about the process of parental participation in clinical decision-making in... Read More about Parental involvement in decision-making in the neonatal intensive care unit : a review of the international evidence.

Health satisfaction and family impact of parents of children with cancer : a descriptive cross-sectional study (2019)
Journal Article

Background: The impact on parents of coping with a child who has cancer can be both severe and multifarious. Considerable distress persists throughout the treatment phase, persisting even after completion of treatment with heightened anxiety and stre... Read More about Health satisfaction and family impact of parents of children with cancer : a descriptive cross-sectional study.

Prolonged grief disorder and its association with perceived social support and depression among university students after the death of a significant person (2018)
Journal Article

The response to loss through the death of a loved one may elicit emotional problems such as depression. Family, friends, significant others and academic staff have been considered to be the major sources of social support for university students. The... Read More about Prolonged grief disorder and its association with perceived social support and depression among university students after the death of a significant person.

Refining and testing the diagnostic accuracy of an assessment tool (PAT-POPS) to predict admission and discharge of children and young people who attend an emergency department : protocol for an observational study (2018)
Journal Article
observational study. BMC Pediatrics, 18(303), https://doi.org/10.1186/s12887-018-1268-7

Background: Increasing attendances by children (aged 0–16 years) to United Kingdom Emergency Departments (EDs) challenges patient safety within the National Health Service (NHS) with health professionals required to make complex judgements on whether... Read More about Refining and testing the diagnostic accuracy of an assessment tool (PAT-POPS) to predict admission and discharge of children and young people who attend an emergency department : protocol for an observational study.

The factors impacting on discharge planning in neonatal intensive care units: a systematic review (2017)
Journal Article
Alreshidi, N., & Long, T. (2017). The factors impacting on discharge planning in neonatal intensive care units: a systematic review

Background: The discharge planning process is an indispensable component of neonatal intensive care. However, this comes with various challenges. This review was undertaken to inform practice.
Aim: The review was designed to identify factors that co... Read More about The factors impacting on discharge planning in neonatal intensive care units: a systematic review.