“Taking part in the project has really changed our experience as a family” Investigating parents’ experience of participation in a study to screen for Fetal Alcohol Spectrum Disorder.

McCarthy, Robyn; Blackburn, Carolyn; Mukherjee, Raja; Allely, Clare; Cook, Penny

doi:10.1016/j.heliyon.2024.e30076

All Outputs (3)

Establishing a national linked database for fetal alcohol spectrum disorder (FASD) in the UK: multi-method public and professional involvement to determine acceptability and feasibility (2024)
Journal Article
Harding, S., Samways, B., Dillon, A., Mukherjee, R., Butcher, S., Cook, P., & McQuire, C. (2024). Establishing a national linked database for fetal alcohol spectrum disorder (FASD) in the UK: multi-method public and professional involvement to determine acceptability and feasibility. #Journal not on list, 9(1), Article 21. https://doi.org/10.23889/ijpds.v9i1.2381

Introduction: Fetal alcohol spectrum disorder (FASD) is one of the leading non-genetic causes of developmental disability worldwide and is thought to be particularly common in the UK. Despite this, there is a lack of data on FASD in the UK.

Object... Read More about Establishing a national linked database for fetal alcohol spectrum disorder (FASD) in the UK: multi-method public and professional involvement to determine acceptability and feasibility.

Modern Day Virtual Eyam Experience: an Interactive Learning Resource using ThingLink (2024)
Digital Artefact
Clarke-Cornwell, A., Clark, A., Chambers, D., Greene, L., Cook, P., McCarthy, R., …Cooper-Ryan, A. (2024). Modern Day Virtual Eyam Experience: an Interactive Learning Resource using ThingLink. [Website]

This piece of work is an interactive learning resource using the ThingLink software. It is aimed at Public Health students and is a walkthrough of the village of Eyam in Derbyshire, which had an outbreak of the plague in 1665/1666. The village took t... Read More about Modern Day Virtual Eyam Experience: an Interactive Learning Resource using ThingLink.

“Taking part in the project has really changed our experience as a family” Investigating parents’ experience of participation in a study to screen for Fetal Alcohol Spectrum Disorder. (2024)
Journal Article
McCarthy, R., Blackburn, C., Mukherjee, R., Allely, C., & Cook, P. (2024). “Taking part in the project has really changed our experience as a family” Investigating parents’ experience of participation in a study to screen for Fetal Alcohol Spectrum Disorder. Heliyon, 10(9), https://doi.org/10.1016/j.heliyon.2024.e30076

Background
Screening children for developmental disorders presents unique ethical and methodological challenges, particularly with disorders associated with high levels of shame and stigma. Fetal alcohol spectrum disorder (FASD) is a neurodevelopmen... Read More about “Taking part in the project has really changed our experience as a family” Investigating parents’ experience of participation in a study to screen for Fetal Alcohol Spectrum Disorder..